Ungayibona kanjani i-cystic fibrosis enganeni nokuthi kufanele ukwelashwa kanjani

-Delile

• Izimpawu ze-cystic fibrosis
• Ungakuqinisekisa kanjani ukuxilongwa
• Ukwelashwa kwe-cystic fibrosis
• Izinkinga ezingenzeka
• Isikhathi sokuphila

Enye yezindlela zokusola uma ingane ine-cystic fibrosis ukubheka ukuthi izithukuthuku zayo zinosawoti omningi yini kunokujwayelekile, lokhu kungenxa yokuthi lesi sici sivame kakhulu kulesi sifo. Yize izithukuthuku ezinosawoti zikhomba i-cystic fibrosis, ukuxilongwa kwenziwa kuphela ngokuhlolwa kwesithende, okumele kwenziwe ngenyanga yokuqala yokuphila. Uma kunomphumela omuhle, ukuxilongwa kuqinisekiswa ukuhlolwa kwezithukuthuku.

ICystic fibrosis yisifo esizalwa naso esingenalo ikhambi, lapho ezinye izindlala zikhiqiza uketshezi olungavamile oluthinta kakhulu amapheshana okugaya nawokuphefumula. Ukwelashwa kwayo kubandakanya imithi, ukudla, ukwelashwa ngokomzimba futhi, kwezinye izimo, ukuhlinzwa. Isikhathi sokuphila seziguli siyakhula ngenxa yentuthuko ekwelashweni nasezingeni eliphakeme lokunamathela, lapho umuntu omaphakathi efinyelela eminyakeni engama-40 ubudala. Funda kabanzi mayelana ne-cystic fibrosis.

Izimpawu ze-cystic fibrosis

Uphawu lokuqala lwe-cystic fibrosis kulapho ingane ingakwazi ukuqeda i-meconium, ehambelana nendle yokuqala yosana, ngosuku lokuqala noma lwesibili lokuphila. Kwesinye isikhathi ukwelashwa ngezidakamizwa kwehluleka ukuncibilika kulezi zitulo futhi kufanele kususwe ngokuhlinzwa. Ezinye izimpawu ezibonisa i-cystic fibrosis yilezi:

• Umjuluko onosawoti;
• Ukukhwehlela okungapheli, ukuphazamisa ukudla nokulala;
• Isikhohlela esijiyile;
• I-bronchiolitis ephindaphindiwe, okuwukuvuvukala okungapheli kwe-bronchi;
• Izifo zokuphefumula eziphindaphindwayo, njenge-pneumonia;
• Kunzima ukuphefumula;
• Ukukhathala;
• Uhudo olungapheli noma ukuqunjelwa okukhulu;
• Ukuphelelwa isifiso sokudla;
• Amagesi;
• Izitulo ezinamafutha, ezinombala okhanyayo;
• Kunzima ukuthola isisindo nokukhula okuqinile.

Lezi zimpawu ziqala ukuzibonakalisa emasontweni okuqala okuphila futhi ingane kufanele ithole ukwelashwa okufanele ukugwema ukuba kubi kwalesi simo. Kodwa-ke, kungenzeka ukuthi i-cystic fibrosis imnene futhi izimpawu zivele ebusheni noma ebudaleni.

Ungakuqinisekisa kanjani ukuxilongwa

Ukuxilongwa kwe-cystic fibrosis kwenziwa ngokuhlolwa kwesithende, okuyimpoqo kubo bonke abantwana abasanda kuzalwa futhi kufanele kwenziwe kuze kube yinyanga yokuqala yokuphila. Ezimweni zemiphumela emihle, kwenziwa umjuluko ukuze kuqinisekiswe ukuxilongwa. Kulesi sivivinyo, ukujuluka okuncane okuvela enganeni kuyaqoqwa futhi kuhlolwe, njengoba ezinye izinguquko kumjuluko zibonisa ukuba khona kwe-cystic fibrosis.

Noma kunomphumela omuhle wezivivinyo ezi-2, ukuhlolwa kwezithukuthuku kuvame ukuphindwa ukuze kuqinisekiswe ukutholakala kokugcina, ngaphezu kokuthi kubalulekile ukubona izimpawu ezethulwa ngumntwana. Izingane ezindala ezinezimpawu ze-cystic fibrosis kufanele zihlolwe umjuluko ukuqinisekisa ukuxilongwa.

Ngaphezu kwalokho, kubalulekile ukwenza ukuhlolwa kofuzo ukubheka ukuthi yikuphi ukuguquka okuhlobene ne-cystic fibrosis ingane enakho, ngoba ngokuya ngokuguquka kwesifo, lesi sifo singaba nokuqhubekela phambili okunamandla noma okunzima kakhulu, okungakhombisa isu elihle kakhulu lokwelashwa okufanele okumele ilandelwe.isungulwe ngudokotela wezingane.

Yazi ezinye izifo ezingabonakala ngokuhlolwa kwesithende.

Ukwelashwa kwe-cystic fibrosis

Ukwelashwa kwe-cystic fibrosis kufanele kuqale ngokushesha nje lapho kutholakala ukuxilongwa, noma ngabe azikho izimpawu, ngoba izinhloso ukuhlehlisa ukutheleleka kwamaphaphu nokuvimbela ukungondleki nokubambezeleka kokukhula.Ngakho-ke, ukusetshenziswa kwama-antibiotic ukulwa nokuvimbela ukutheleleka okungenzeka kungakhonjiswa ngudokotela, kanye nokusetshenziswa kwemithi elwa nokuvuvukala ukusiza ukukhulula izimpawu ezihlobene nokuvuvukala kwamaphaphu.

Kuyakhonjiswa futhi ukuthi kusetshenziswa imishanguzo ye-bronchodilator ukwenza lula ukuphefumula kanye nama-mucolytics ukusiza ukunciphisa i-phlegm nokwenza lula ukuqeda Udokotela wezingane angancoma futhi ukusetshenziswa kwezithasiselo zamavithamini A, E K no-D, ngaphezu kwama-enzyme wokugaya ukudla okusiza ukugaya ukudla.

Ukwelashwa kufaka ochwepheshe abaningana, ngoba ngaphezu kokusetshenziswa kwemithi, i-physiotherapy yokuphefumula, ukuqapha okunomsoco nangokwengqondo, ukwelashwa kwe-oksijini ukuthuthukisa ukuphefumula futhi, kwezinye izimo, ukuhlinzwa ukuze uthuthukise ukusebenza kwamaphaphu noma ukufakelwa kwamaphaphu nakho kuyadingeka. Bona ukuthi ukudla kungasiza kanjani ukuphatha i-cystic fibrosis.

Izinkinga ezingenzeka

ICystic fibrosis idala izinkinga ezithweni eziningana zomzimba, ezingadala:

• I-bronchitis engapheli, ngokuvamile enzima ukuyilawula;
• Ukuntuleka kwepancreatic, okungaholela ekusetshenzisweni okungalungile kokudla okudliwayo nokungondleki;
• Isifo sikashukela;
• Izifo zesibindi, njengokuvuvukala nokuqina kwesibindi;
• Inzalo;
• I-distal intestinal obstruction syndrome (i-DIOS), lapho kwenzeka khona ukuvaleka kwamathumbu, kubangele amajaqamba, izinhlungu nokuvuvukala esiswini;
• Gall amatshe;
• Isifo samathambo, esiholela ekukhululekeni okukhulu kwamathambo;
• Ukungondleki.

Ezinye izinkinga ze-cystic fibrosis kunzima ukuzilawula, kepha ukwelashwa kusenesikhathi kuyindlela engcono kakhulu yokwandisa ikhwalithi yempilo nokuthanda ukukhula okufanele kwengane. Yize banezinkinga eziningi, abantu abane-cystic fibrosis imvamisa bayakwazi ukuya esikoleni nasemsebenzini.

Isikhathi sokuphila

Isikhathi sokuphila sabantu abane-cystic fibrosis siyahlukahluka kuye ngomuntu ngokuya ngoshintsho, ucansi, ukunamathela ekwelashweni, ukuqina kwezifo, ubudala ekuhlolweni nasekubonakaliseni ukuphefumula, ukugaya kanye ne-pancreatic. Isibikezelo ngokuvamile sibi kakhulu kubantu abangalashwa ngendlela efanele, abathola ukuxilongwa sekwedlule isikhathi noma abangenakho ukusebenza kahle kwepancreatic.

Kubantu abatholwe kusenesikhathi, okungcono ngemuva nje kokuzalwa, kungenzeka ukuthi umuntu afinyelele eminyakeni engama-40 ubudala, kepha ngenxa yalokho kuyadingeka ukwelashwa ngendlela efanele. Thola ukuthi ukwelashwa kwe-cystic fibrosis kufanele kwenziwe kanjani.

Njengamanje, cishe abantu abangama-75% abalandela ukwelashwa kwe-cystic fibrosis njengoba kunconyiwe bafinyelela ekupheleni kobusha futhi cishe ama-50% afinyelela eminyakeni eyishumi yokuphila, okwakungu-10% kuphela ngaphambili.

Noma ngabe ukwelashwa kwenziwa ngendlela efanele, ngeshwa kunzima ukuthi umuntu otholwe ene-cystic fibrosis afinyelele eminyakeni engama-70, ngokwesibonelo. Lokhu kungenxa yokuthi noma ngabe ukwelashwa okufanelekile, kunokubandakanyeka okuqhubekayo kwezitho, okuzenza zibe ntekenteke, zibuthakathaka futhi zilahlekelwe ukusebenza kwazo eminyakeni edlule, okuholela ezimeni eziningi, ukwehluleka kokuphefumula.

Ngaphezu kwalokho, ukutheleleka ngama-microorganisms kuvame kakhulu kubantu abane-cystic fibrosis futhi ukwelashwa njalo ngama-antimicrobial kungadala ukuthi amabhaktheriya angazweli, angaqhubeka nokuba nzima isimo somtholampilo sesiguli.