Ukulungiswa Kwendlela Yokuphila Eyenza Umehluko Ku-MS Progressive MS

-Delile

• Zijwayeze indlela yokuphila enempilo isiyonke
• Cabanga ukusebenzisa amadivayisi wokuhamba
• Yenza ukulungiswa ekhaya lakho
• Cela indawo yokuhlala emsebenzini
• Ukuthatha

Ukubuka konke

I-multiple sclerosis eqhubekayo yesibili (i-SPMS) ingathinta amandla akho okuqedela imisebenzi yansuku zonke emsebenzini noma ekhaya. Ngokuhamba kwesikhathi, izimpawu zakho zizoshintsha. Ungahle udinge ukulungisa isimo sakho sansuku zonke nezindawo ezizungezile ukuhlangabezana nezidingo zakho zokushintsha.

Kunezinyathelo eziningi ongazithatha ukuphatha i-SPMS yakho nokugcina ikhwalithi yempilo yakho. Ungahle uthande ukucabanga ngokuguqula imikhuba ethile yokuphila, ucele indawo yokuhlala emsebenzini, ulungise indawo yakho yokuhlala, nokuningi.

Thatha isikhashana ufunde ngamanye amasu ongawasebenzisa ukwenza impilo ibe lula nge-SPMS.

Zijwayeze indlela yokuphila enempilo isiyonke

Uma unesimo esingelapheki njenge-SPMS, imikhuba enempilo ibalulekile ukuze uhlale usesimweni esihle futhi ulawule izimpawu zakho.

Ukudla ukudla okunomsoco, ukuhlala usebenza, nokulawula isisindo sakho kungasiza ekuthuthukiseni amazinga akho wamandla, amandla, imizwa nokusebenza kwengqondo. Ngokuya ngemikhuba yakho yamanje, udokotela wakho angancoma izinguquko kokudla kwakho, indlela ozivocavoca ngayo, noma isu lokulawulwa kwesisindo.

Ukuphumula ngokwanele nakho kubalulekile uma une-SPMS. Uma ukuthola kunzima ukulala noma uzizwa ukhathele njalo, yazisa udokotela wakho. Kwezinye izimo, bangancoma ushintsho esimisweni sakho sokulala, indawo okulala kuyo, noma uhlobo lwemithi.

Kubalulekile futhi ukugwema intuthu kagwayi ukukhawulela izimpawu zakho nokukhuthaza impilo yonke. Uma ubhema, cela udokotela wakho amathiphu nezinsiza ukukusiza uyeke.

Cabanga ukusebenzisa amadivayisi wokuhamba

Uma ulahlekelwe ibhalansi yakho, ukukhubeka, noma ukuthola kunzima ukuma noma ukuhamba, yazisa udokotela wakho noma umelaphi wokuvuselela. Bangase benze izinguquko ohlelweni lwemithi yakho, bancome ukuvivinya umzimba, noma bakukhuthaze ukuthi usebenzise idivaysi yokusekela ukuhamba.

Isibonelo, ungahlomula ngokusebenzisa:

• uhlobo lwe-brace olwaziwa njenge-ankle-foot orthosis (AFO)
• idivaysi esebenzayo yokukhuthaza ugesi, esiza ukwenza kusebenze imisipha emlenzeni wakho
• induku, izinduku, noma i-walker
• isithuthuthu noma isihlalo esinamasondo

Ukusebenzisa eyodwa noma amaningi alawa madivayisi kungasiza ekuvikeleni ukuhamba nokuwa, ukunciphisa ukukhathala, nokukhuphula izinga lomsebenzi wakho. Lokhu kungaba nomphumela obonakalayo ekuzimeleleni naseqophelweni lempilo yakho.

Yenza ukulungiswa ekhaya lakho

Ungenza ushintsho endaweni yakho yokuhlala ukusiza ukuphatha izimpawu ze-SPMS ongahle ube nazo. Izinto ezinjengokulahleka kombono, ukungahambi kahle, nezinye izinselelo kungenza kube nzima ukuzungeza ngisho nezindawo ezijwayeleke kakhulu.

Isibonelo, kungasiza uku:

• Lahla noma yiziphi izinto ongasazidingi noma ongazifuni. Ukunciphisa imfuhlumfuhlu kungenza kube lula ukuthola okudingayo nokunakekela ikhaya lakho.
• Hlela izikhala zokugcina ukwenza izinto ezisetshenziswe njalo zifinyeleleke. Lokhu kubaluleke kakhulu uma ukuthola kunzima ukukhuphuka izitebhisi, ukufinyelela ezindaweni eziphakeme, noma ukuphakamisa izinto ezisindayo.
• Lungisa ukubekwa kwefenisha, okhaphethi, nezinye izinto ukuqinisekisa ukuthi unendlela ecacile ongahamba ngayo noma ohamba ngayo ngesihlalo sakho esinamasondo.
• Khweza imigoqo yokubamba noma okokubamba ngesandla endlini yakho yokugezela, ekamelweni lokulala nakwezinye izikhala ukukusiza usukume, uhlale phansi, futhi uzulazule ngokuphepha.
• Faka esikhundleni noma uphakamise imibhede ephansi, izihlalo, nezihlalo zangasese ukwenza kube lula ukuvuka kuzo. Uma usebenzisa isihlalo sabakhubazekile, kungadingeka ukuthi ulungise ukuphakama kwamatafula, ama-countertops, ama-switch light, izingcingo, nezinye izindawo noma izinto.
• Faka izitampu, amalifti, noma izihlalo zezitebhisi zikagesi ukukusiza ukweqa izitebhisi noma izindlela zokungena eziphakeme. Ngokuya ngezidingo zakho zokuhamba, ungahle ukuthole kuwusizo ukufaka amalifti wokudlulisa eduze kombhede wakho, ubhavu, noma ezinye izindawo.

Olunye ushintsho oluningi lungenziwa endaweni yakho yokuhlala ukuyenza iphephe, ikhululeke kakhudlwana, futhi kube lula ukuyisebenzisa nge-SPMS. Ukuze uthole amathiphu nezinsizakusebenza ezengeziwe, khuluma nodokotela wakho osebenzayo. Zingakusiza nokuthi ufunde ngokuguqulwa kwezimoto zakho.

Cela indawo yokuhlala emsebenzini

Njengekhaya lakho, kungenziwa izinguquko eziningi endaweni osebenzela kuyo ukuze iphephe futhi ikhululeke kakhudlwana kumuntu one-SPMS.

E-United States, abaqashi abaningi kudingeka ngokomthetho ukuthi banikeze indawo yokuhlala efanelekile yabasebenzi abakhubazekile. Isibonelo, umqashi wakho angakwazi uku:

• lungisa indima yakho noma izibopho emsebenzini
• ukukuguqula kusuka emsebenzini wesikhathi esigcwele uye emsebenzini wesikhashana
• ikunikeze isikhathi esengeziwe sokuya kudokotela noma ikhefu lokugula
• ikuvumela ukuthi usebenze ekhaya ngezikhathi ezithile noma njalo
• hambisa indawo yedeski lakho noma indawo yokupaka ukwenza kufinyeleleke kalula
• faka imigoqo yokubamba ezindaweni zangasese, ama-ramps emnyango, noma izicabha zemishini

Ilungelo lakho lokuhlala lincike kumqashi wakho kanye nesimo sokukhubazeka.

Uma uhlala futhi usebenza e-United States, ungathola imininingwane ethe xaxa ngamalungelo akho nge-U.S.Hhovisi Labasebenzi lase-Job yokuhlala Network.

Ukuthatha

Lawa ngamasu ambalwa ongawasebenzisa ukuzivumelanisa nezidingo zakho nge-SPMS.

Ukuze uthole amathiphu nezinsiza ezengeziwe, khuluma nodokotela wakho, owelapha emsebenzini, noma amanye amalungu eqembu lakho lokunakekelwa kwezempilo. Bangakusiza ufunde ukuthi ungalungisa kanjani imikhuba yakho yansuku zonke nezindawo zakho. Bangancoma futhi amadivayisi okusiza noma amanye amathuluzi ukukusiza uqedele imisebenzi yansuku zonke.