Ukuhlela Usuku Lakho Nosuku Ngenkathi Uhlala ne-IPF

-Delile

• Ukuvakasha kodokotela
• Imithi
• Ukuzivocavoca umzimba
• Lala
• Isimo sezulu
• Ukudla
• Usizo
• Isikhathi somphakathi
• Usuku lokuyeka ukubhema
• Imihlangano yeqembu lokusekela

Uma uphila ne-idiopathic pulmonary fibrosis (IPF), uyazi ukuthi lesi sifo singaba sibi kangakanani. Izimpawu zakho zingashintsha ngokuphawulekayo inyanga nenyanga - noma ngisho nosuku nosuku. Ekuqaleni kwesifo sakho, ungazizwa uphilile ngokwanele ukusebenza, ukuzivocavoca umzimba, nokuphuma nabangani. Kepha lapho lesi sifo siqubuka, ukukhwehlela kwakho nokuphefumula okuncane kungaba nzima kakhulu ukuze ube nenkinga yokushiya ikhaya lakho.

Isimo esingaguquguquki sezimpawu ze-IPF senza kube nzima ukuhlela kusengaphambili. Kodwa ukuhlela okuncane kungenza kube lula ukuphatha isifo sakho. Qala ukugcina ikhalenda yansuku zonke, yamasonto onke, noma yanyanga zonke, bese uyigcwalisa ngale misebenzi okufanele uyenze nezikhumbuzi.

Ukuvakasha kodokotela

I-IPF yisifo esingelapheki futhi esiqhubekayo. Izimpawu zakho zingashintsha ngokuhamba kwesikhathi, futhi ukwelashwa okwake kwasiza ukulawula ukuphefumula kwakho nokukhwehlela kungahle kuyeke ukusebenza ngempumelelo. Ukuze ulawule izimpawu zakho futhi uvimbele izinkinga, kuzodingeka usethe uhlelo lokuvakashelwa nomhlinzeki wakho wezokunakekelwa kwempilo.

Hlela ukubona udokotela wakho cishe kathathu noma kane ngonyaka. Qopha lokhu kuvakashela kukhalenda lakho ukuze ungakhohlwa ngakho. Futhi gcina ithrekhi yanoma yikuphi ukuqokwa okwengeziwe onakho nabanye ochwepheshe bezivivinyo nezindlela zokwelashwa.

Lungiselela ukuvakasha ngakunye ngaphambi kwesikhathi ngokubhala uhlu lwemibuzo nokukhathazeka kukadokotela wakho.

Imithi

Ukuhlala uthembekile emithini yakho yokwelashwa kuzosiza ukulawula izimpawu zakho nokuphatha ukuqhubeka kwesifo sakho. Izidakamizwa ezimbalwa zivunyelwe ukwelapha i-IPF, kufaka phakathi i-cyclophosphamide (Cytoxan), N-acetylcysteine ​​(Acetadote), nintedanib (Ofev), ne-pirfenidone (Esbriet, Pirfenex, Pirespa). Uzothatha umuthi wakho kathathu noma kathathu ngosuku. Sebenzisa ikhalenda yakho njengesikhumbuzo ukuze ungakhohlwa umthamo.

Ukuzivocavoca umzimba

Yize ungazizwa uphefumula kanzima futhi ukhathele ukuzivocavoca umzimba, ukuhlala usebenza kungathuthukisa lezi zimpawu. Ukuqinisa inhliziyo yakho neminye imisipha kuzokusiza futhi ukufeza imisebenzi yakho yansuku zonke kalula. Awudingi ukwenza ukuzivocavoca okugcwele kwehora lonke ukuze ubone imiphumela. Ukuhamba ngisho nemizuzu embalwa ngosuku kuyasiza.

Uma unenkinga yokuzivocavoca umzimba, buza udokotela wakho mayelana nokubhalisa kuhlelo lokuvuselela amaphaphu. Kulolu hlelo, uzosebenzisana nochwepheshe bokuzivocavoca ukuze ufunde ukuthi ungazilungela kanjani ngokuphepha, nangaphakathi kwezinga lekhono lakho.

Lala

Ukulala amahora ayisishiyagalombili ubusuku ngabunye kubalulekile ukuze uzizwe ungcono kakhulu. Uma ukulala kwakho kungahambi kahle, bhala isikhathi sokulala esibekiwe ekhalendeni lakho. Zama ukungena enkambisweni ngokulala nokuvuka ngezikhathi ezifanayo nsuku zonke - nangezimpelasonto.

Ukukusiza ulale ngehora elibekiwe, yenza okuthile okuphumuzayo njengokufunda incwadi, ukugeza okufudumele, ukuzijwayeza ukuphefumula okujulile, noma ukuzindla.

Isimo sezulu

I-IPF ingakwenza ungabekezeleli ukweqisa kwezinga lokushisa. Phakathi nezinyanga zasehlobo, hlela imisebenzi yakho ekuseni kakhulu, lapho ilanga nokushisa kungashubile kangako. Hlela amakhefu ntambama ekhaya emoyeni.

Ukudla

Ukudla okukhulu akunconywa uma une-IPF. Ukuzizwa ugcwele kakhulu kungenza kube nzima ukuphefumula. Esikhundleni salokho, hlela ukudla okuncane okuncane nokudla okulula nsuku zonke.

Usizo

Imisebenzi yansuku zonke njengokuhlanza indlu nokupheka ingaba nzima kakhulu uma unenkinga yokuphefumula. Lapho abangane namalungu omndeni bethembisa ukusiza, ungamane uthi yebo. Bahlele ekhalendeni lakho. Setha indawo enesigamu sehora noma yehora ukuze abantu bakuphekele ukudla, bakuthengele ukudla, noma bakudonsele ekuvakasheni odokotela.

Isikhathi somphakathi

Noma uzizwa ungaphansi kwesimo sezulu, kubalulekile ukuhlala uxhumekile emphakathini ukuze ungabi wedwa futhi ube nesizungu. Uma ungakwazi ukuphuma endlini, setha izingcingo zefoni noma ze-Skype nabangani noma izihlobo, noma xhuma ngemidiya yokuxhumana nomphakathi.

Usuku lokuyeka ukubhema

Uma usabhema, manje isikhathi sokuyeka. Ukuphefumula intuthu kagwayi kungazonakalisa izimpawu zakho ze-IPF. Setha usuku ekhalendeni lakho lokuyeka ukubhema, bese unamathela kulo.

Ngaphambi kosuku lwakho lokuyeka, lahla wonke ugwayi kanye nothreyayi womuzi wakho. Hlangana nodokotela wakho ukuze uthole izeluleko zokuthi ungayeka kanjani. Ungazama imithi yokusiza ukwehlisa isifiso sakho sokubhema, noma usebenzise imikhiqizo yokufaka esikhundleni se-nicotine njenge-patch, gum, noma i-nasal spray.

Imihlangano yeqembu lokusekela

Ukuhlangana nabanye abantu abane-IPF kungakusiza uzizwe uxhumeke kakhulu. Ungafunda - futhi uncike - kwamanye amalungu eqembu. Zama ukuya emihlanganweni njalo. Uma ungabambi iqhaza eqenjini lokusekela, ungalithola ngePulmonary Fibrosis Foundation.