I-Pulmonary Arterial Hypertension: Ukulindela Ukuphila ne-Outlook

-Delile

• Isikhathi sokuphila sabantu abane-PAH
• Isimo sokusebenza se-PAH
• Isigaba 1
• Isigaba 2
• Isigaba 3
• Isigaba 4
• Izinhlelo zokuvuselelwa kwe-Cardiopulmonary
• Ungasebenza kanjani ne-PAH
• Ukunakekelwa okusekelayo nokunciphisayo kwe-PAH
• Impilo ne-PAH

I-pulmonary arterial hypertension (PAH) uhlobo olungajwayelekile lomfutho wegazi ophakeme ohilela uhlangothi lwenhliziyo yakho kanye nemithambo ehambisa igazi emaphashini akho. Le mithambo yegazi ibizwa ngokuthi yimithambo yamaphaphu.

I-PAH yenzeka lapho imithambo yakho ye-pulmonary ishwabanisa noma ikhule iqine futhi inciphe ngaphakathi lapho kugeleza khona igazi. Lokhu kwenza ukuhamba kwegazi kube nzima kakhulu.

Ngalesi sizathu, inhliziyo yakho kufanele isebenze kanzima ukududula igazi ngemithambo yakho yamaphaphu. Ngokulandelayo, le mithambo ayikwazi ukuthwala igazi elanele emaphashini akho ukuze kube nokushintshana okwanele komoya.

Uma lokhu kwenzeka, umzimba wakho awukwazi ukuthola umoya-mpilo owudingayo. Ngenxa yalokho, ukhathala kalula.

Ezinye izimpawu zingabandakanya:

• ukuphelelwa umoya
• ubuhlungu besifuba noma ingcindezi
• ukushaya kwenhliziyo
• isiyezi
• ukuquleka
• ukuvuvukala ezingalweni nasemilenzeni
• umjaho wokujaha

Isikhathi sokuphila sabantu abane-PAH

Ucwaningo olwenziwe yiRegistry lokuHlola Ukuphathwa Kwezifo Zasekuqaleni Nesikhathi Eside (REVEAL) luthole ukuthi ababambiqhaza bocwaningo ne-PAH banamazinga alandelayo okusinda:

• Amaphesenti angama-85 ngonyaka owodwa
• Amaphesenti angama-68 eminyakeni emithathu
• Amaphesenti angama-57 eminyakeni emihlanu

Kubalulekile ukuqaphela ukuthi amazinga okusinda awavamile. Lezi zinhlobo zezibalo azikwazi ukubikezela umphumela wakho.

Umbono wawo wonke umuntu wehlukile futhi ungahluka kakhulu, kuya ngohlobo lwe-PAH onalo, ezinye izimo, kanye nokukhetha ukwelashwa.

Yize i-PAH ingenalo ikhambi lamanje, ingelashwa. Ukwelashwa kunganciphisa izimpawu futhi kungabambezela ukuqhubeka kwesimo.

Ukuze bathole ukwelashwa okufanele, abantu abane-PAH bavame ukuhanjiswa esikhungweni esikhethekile somfutho wegazi ophakeme ukuze kuhlolwe futhi kuphathwe.

Kwezinye izimo, ukufakelwa kwamaphaphu kungenziwa njengendlela yokwelashwa. Yize lokhu kungathuthukisi umbono wakho, ukufakelwa kwamaphaphu kungasiza i-PAH engaphenduli kwezinye izinhlobo zokwelashwa.

Isimo sokusebenza se-PAH

Uma une-PAH, udokotela wakho cishe uzosebenzisa uhlelo olujwayelekile ukukala “isimo sakho sokusebenza”. Lokhu kutshela udokotela wakho okuningi ngobukhulu be-PAH.

Ukuqhubeka kwe-PAH kuhlukaniswe kwaba. Inombolo enikezwe i-PAH yakho ichaza ukuthi uyakwazi kanjani kalula ukwenza imisebenzi yansuku zonke nokuthi isifo sithinte kangakanani usuku lwakho nosuku.

Isigaba 1

Kulesi sigaba, i-PAH ayilinganisi imisebenzi yakho ejwayelekile. Uma wenza imisebenzi ejwayelekile yomzimba, awubi nezimpawu ze-PAH.

Isigaba 2

Ekilasini lesibili, i-PAH ithinta kuphela imisebenzi yakho yomzimba. Awunazo izimpawu ze-PAH ekuphumuleni. Kepha umsebenzi wakho ojwayelekile womzimba ungadala izimpawu ngokushesha, kufaka phakathi izinkinga zokuphefumula nobuhlungu besifuba.

Isigaba 3

Amakilasi amabili okugcina asebenzayo akhombisa ukuthi i-PAH ikhula ngokuya ngokuya iba yimbi.

Kuleli qophelo, awunakuphatheka kabi lapho uphumule. Kodwa akuthathi umsebenzi omningi womzimba ukudala izimpawu nokucindezeleka ngokomzimba.

Isigaba 4

Uma une-class IV PAH, awukwazi ukwenza imisebenzi yomzimba ngaphandle kokuhlangabezana nezimpawu ezinzima. Ukuphefumula kuyasebenza, ngisho nasekuphumuleni. Ungahle ukhathale kalula. Inani elincane lomsebenzi womzimba lingenza izimpawu zakho zibe zimbi kakhulu.

Izinhlelo zokuvuselelwa kwe-Cardiopulmonary

Uma uthole ukuxilongwa kwe-PAH, kubalulekile ukuthi uhlale usebenza ngokusemandleni ngangokunokwenzeka.

Kodwa-ke, umsebenzi onzima ungalimaza umzimba wakho. Ukuthola indlela efanelekile yokuhlala usebenza nge-PAH kungaba yinselele.

Udokotela wakho angancoma izikhathi zokuhlolisiswa kwe-cardiopulmonary eziqondisiwe ukukusiza uthole ibhalansi elungile.

Ochwepheshe bezempilo abaqeqeshiwe bangakusiza ukuthi wakhe uhlelo olunikeza ukuzivocavoca umzimba okwanele ngaphandle kokukucindezela ngaphezu kwalokho umzimba wakho ongakuphatha.

Ungasebenza kanjani ne-PAH

Ukuxilongwa kwe-PAH kusho ukuthi uzobhekana nemikhawulo ethile. Isibonelo, abantu abaningi abane-PAH akufanele baphakamise noma yini esindayo. Ukuphakamisa okunzima kungakhuphula umfutho wegazi, ongaxaka futhi usheshise nezimpawu.

Izinyathelo eziningi zingakusiza ukuphatha umfutho wegazi ophakeme wamaphaphu, kufaka phakathi i-PAH:

• Iya kukho konke ukuqokwa kwezokwelapha futhi ufune izeluleko uma kuvela izimpawu ezintsha noma izimpawu ziba zimbi kakhulu.
• Yiba nemigomo yokuvimbela umkhuhlane kanye nesifo se-pneumococcal.
• Buza ngokusekelwa ngokomzwelo nangokwenhlalo ukusiza ukuphatha ukukhathazeka nokudangala.
• Yenza izivivinyo ezigadiwe futhi uhlale usebenza ngangokunokwenzeka.
• Sebenzisa i-oxygen eyengeziwe ngesikhathi sendiza yendiza noma endaweni ephakeme.
• Gwema i-anesthesia ejwayelekile kanye nama-epidurals, uma kungenzeka.
• Gwema amabhavu ashisayo nama-sauna, okungabeka ubunzima emaphashini noma enhliziyweni.
• Yidla ukudla okunomsoco ukukhulisa impilo yonke kanye nokuphila kahle.
• Gwema intuthu. Uma ubhema, khuluma nodokotela wakho ngokusetha uhlelo lokuyeka.

Yize kuyiqiniso ukuthi izigaba ezithuthukile ze-PAH zingakhula zimbi ngomsebenzi womzimba, ukuba ne-PAH akusho ukuthi kufanele ugweme umsebenzi ngokuphelele. Udokotela wakho angakusiza uqonde ukulinganiselwa kwakho futhi uthole izixazululo.

Uma ucabanga ukukhulelwa, khuluma nodokotela wakho kuqala. Ukukhulelwa kungafaka ubunzima obengeziwe emaphashini nasenhliziyweni yakho.

Ukunakekelwa okusekelayo nokunciphisayo kwe-PAH

Njengoba i-PAH iqhubeka, impilo yansuku zonke ingaba yinselelo, kungaba ngenxa yobuhlungu, ukuphefumula, ukukhathazeka ngekusasa, noma ezinye izinto.

Izinyathelo ezisekelayo zingakusiza ukuthi ukwandise izinga lakho lempilo ngalesi sikhathi.

Ungase futhi udinge ukwelashwa okulandelayo okusekelayo, kuya ngezimpawu zakho:

• isisu esimweni sokuhluleka kwesokudla kwe-ventricular
• ukwelashwa kwe-anemia, ukuntuleka kwensimbi, noma kokubili
• ukusetshenziswa kwemithi evela ekilasini le-endothelin receptor antagonist (ERA), njenge-ambrisentan

Njengoba i-PAH iqhubeka, kuzofanela ukuxoxa ngezinhlelo zokuphela kokuphila nabathandekayo, abanakekeli, kanye nabahlinzeki bezempilo. Ithimba lakho lokunakekelwa kwezempilo lingakusiza ukuthi wakhe uhlelo olufunayo.

Impilo ne-PAH

Inhlanganisela yezinguquko zokuphila, imishanguzo nokuhlinzwa kungashintsha ukuqhubeka kwe-PAH.

Yize ukwelashwa kungakwazi ukuguqula izimpawu ze-PAH, ukwelashwa okuningi kungangeza iminyaka empilweni yakho.

Khuluma nodokotela wakho ngokuthola ukwelashwa okufanele kwe-PAH yakho. Bangasebenza nawe ukubambezela ukuqhubeka kwe-PAH nokugcina ikhwalithi yempilo.