Ingabe Ukukhululwa Kungenzeka Nge-Secondary Progressive MS? Ukukhuluma nodokotela wakho

-Delile

• Ngabe ukuxolelwa kungenzeka nge-SPMS?
• Yiziphi izimpawu ezingaba khona ze-SPMS?
• Ngingaziphatha kanjani izimpawu ze-SPMS?
• Ngabe ngizolahlekelwa yikhono lami lokuhamba ne-SPMS?
• Kufanele ngivakashele kangaki udokotela wami ukuyohlola?
• Ukuthatha

Ukubuka konke

Iningi labantu abane-MS baqala ukutholakala ukuthi bane-MS ebuyisa kabusha (RRMS). Kulolu hlobo lwe-MS, izikhathi zomsebenzi wezifo zilandelwa yizikhathi zokululama ngokwengxenye noma okuphelele. Lezo zikhathi zokululama zaziwa nangokuthi ukuthethelelwa.

Ekugcineni, iningi labantu abane-RRMS liyaqhubeka nokuthuthukisa i-MS yesibili eqhubekayo (SPMS). Ku-SPMS, ukulimala kwemizwa nokukhubazeka kuvame ukuthuthuka ngokuhamba kwesikhathi.

Uma une-SPMS, ukuthola ukwelashwa kungasiza ekunciphiseni ukuqhubeka kwesimo, ukunciphisa izimpawu, nokubambezela ukukhubazeka. Lokhu kungakusiza ukuthi uhlale usebenza ngokwengeziwe futhi unempilo enhle njengoba isikhathi siqhubeka.

Nayi eminye imibuzo ongayibuza udokotela wakho ngempilo ene-SPMS.

Ngabe ukuxolelwa kungenzeka nge-SPMS?

Uma une-SPMS, cishe ngeke udlule ezikhathini zokuxolelwa okuphelele lapho zonke izimpawu ziphela. Kepha ungahle udlule ezikhathini lapho isifo sesisebenza kakhulu noma kancane.

Lapho i-SPMS isebenza ngokwengeziwe ngokuqhubeka, izimpawu ziba zimbi kakhulu nokukhubazeka kuyanda.

Lapho i-SPMS ingasebenzi kancane ngaphandle kokuqhubekela phambili, izimpawu zingase zibe yithafa isikhathi esithile.

Ukunciphisa umsebenzi nokuqhubeka kwe-SPMS, udokotela wakho angahle anikeze ukwelashwa okuguqula izifo (i-DMT). Lolu hlobo lwemithi lungasiza ekunciphiseni noma ekuvimbeleni ukukhula kokukhubazeka.

Ukuze ufunde ngezinzuzo nezingozi zokuthatha i-DMT, khuluma nodokotela wakho. Bangakusiza uqonde futhi ulinganise izinketho zakho zokwelashwa.

Yiziphi izimpawu ezingaba khona ze-SPMS?

I-SPMS ingadala izimpawu ezahlukahlukene, ezahlukahluka kuye ngomuntu. Njengoba isimo siqhubeka, izimpawu ezintsha zingakhula noma izimpawu ezikhona zingase zibe zimbi kakhulu.

Izimpawu ezingaba khona zifaka:

• ukukhathala
• isiyezi
• ubuhlungu
• ukulunywa
• ukuba ndikindiki
• ukuncinza
• ubuthakathaka bemisipha
• ukuqina kwemisipha
• izinkinga ezibukwayo
• izinkinga zokulinganisela
• izinkinga zokuhamba
• Izinkinga zesinye
• Izinkinga zamathumbu
• ukungasebenzi ngokocansi
• izinguquko engqondweni
• izinguquko ezingokomzwelo

Uma uthuthukisa izimpawu ezintsha noma eziphawuleka kakhulu, yazisa udokotela wakho. Babuze ukuthi ngabe kukhona yini ushintsho olungenziwa ohlelweni lwakho lokwelashwa ukusiza ukunciphisa noma ukunciphisa izimpawu.

Ngingaziphatha kanjani izimpawu ze-SPMS?

Ukusiza ukuphatha izimpawu ze-SPMS, udokotela wakho angakunikeza umuthi owodwa noma ngaphezulu.

Bangancoma nezinguquko zendlela yokuphila kanye namasu wokuvuselela ukusiza ukugcina ukusebenza kwakho ngokomzimba nangokwengqondo, ikhwalithi yempilo, nokuzimela.

Isibonelo, ungazuza kulokhu:

• ukwelashwa ngokomzimba
• ukwelashwa emsebenzini
• ukwelashwa ngolimi lokukhuluma
• ukuvuselelwa kwengqondo
• ukusetshenziswa kwethuluzi lokusiza, njengodondolo noma i-walker

Uma ngabe ubhekene nobunzima bokubhekana nemiphumela yezenhlalo noma yemizwa ye-SPMS, kubalulekile ukuthi ufune ukwesekwa. Udokotela wakho angakudlulisela eqenjini lokusekelwa noma kuchwepheshe wezempilo yengqondo ukuthola ukwelulekwa.

Ngabe ngizolahlekelwa yikhono lami lokuhamba ne-SPMS?

Ngokusho kweNational Multiple Sclerosis Society (NMSS), abantu abangaphezu kwengxenye yesibili kwabathathu abane-SPMS balondoloza ikhono lokuhamba. Abanye babo bakuthola kuwusizo ukusebenzisa umoba, i-walker, noma enye insiza yokusiza.

Uma ungasakwazi ukuhamba amabanga amafushane noma amade, udokotela wakho uzokukhuthaza ukuthi usebenzise isithuthuthu esinenjini noma isihlalo esinamasondo ukuzulazula. Lawa madivayisi angakusiza ugcine ukuhamba kwakho nokuzimela.

Yazisa udokotela wakho uma ukuthola kunzima ukuhamba noma ukuqedela eminye imisebenzi yansuku zonke njengoba isikhathi siqhubeka. Bangase banikeze imishanguzo, izindlela zokwelapha zokuvuselela, noma amadivayisi okusiza ukusiza ukuphatha isimo.

Kufanele ngivakashele kangaki udokotela wami ukuyohlola?

Ukuze ufunde ukuthi isimo sakho siqhubeka kanjani, kufanele uhlolwe i-neurologic okungenani kanye ngonyaka, ngokusho kwe-NMSS. Udokotela wakho futhi unganquma ukuthi uzokwenza kaningi kangakanani ukuskena kwe-magnetic resonance imaging (MRI).

Kubalulekile futhi ukwazisa udokotela wakho uma izimpawu zakho ziba zimbi kakhulu noma unenkinga yokuqedela imisebenzi ekhaya noma emsebenzini. Ngokufanayo, kufanele utshele udokotela wakho uma ukuthola kunzima ukulandela uhlelo lwakho lokwelashwa olunconyiwe. Kwezinye izimo, bangancoma ushintsho ekwelashweni kwakho.

Ukuthatha

Noma okwamanje lingekho ikhambi le-SPMS, ukwelashwa kungasiza ekunciphiseni ukukhula kwalesi simo futhi kunciphise imiphumela yaso empilweni yakho.

Ukusiza ukuphatha izimpawu nemiphumela ye-SPMS, udokotela wakho angakunikeza umuthi owodwa noma ngaphezulu. Izinguquko zendlela yokuphila, izindlela zokwelapha ezivuselelayo, noma amanye amasu nawo angakusiza ukuthi ugcine ikhwalithi yempilo yakho.