Izindlela Ezi-6 Ongathola Ngazo Ukusekelwa Kwama-Psoriatic Arthritis

-Delile

• 1. Izinsizakusebenza eziku-inthanethi namaqembu okusekela
• 2. Yakha inethiwekhi yokusekela
• 3. Vulela udokotela wakho ngokukhululekile
• 4. Funa ukunakekelwa kwezempilo yengqondo
• 5. Ukwesekwa kwendawo
• 6. Ezemfundo
• Ukudla okudlela endlini

Ukubuka konke

Uma utholwe une-psoriatic arthritis (i-PsA), ungathola ukuthi ukubhekana nokulimala okungokomzwelo kwalesi sifo kungaba nzima njengokuphatha izimpawu zaso ezibuhlungu futhi kwesinye isikhathi eziqeda amandla.

Imizwa yokuphelelwa yithemba, ukukhishwa inyumbazane, nokwesaba ukuncika kwabanye kungezinye nje zemizwa ongase ube nayo. Le mizwa ingaholela ekukhathazekeni nasekucindezelekeni.

Yize kungabonakala kuyinselele ekuqaleni, nazi izindlela eziyisithupha ongathola ngazo ukwesekwa okwengeziwe ukubhekana ne-PsA.

1. Izinsizakusebenza eziku-inthanethi namaqembu okusekela

Izinsizakusebenza eziku-inthanethi njengamabhulogi, ama-podcast, nama-athikili zivame ukufaka izindaba zakamuva nge-PsA futhi zingakuxhumanisa nabanye.

INational Psoriasis Foundation inolwazi nge-PsA, ama-podcast, kanye nomphakathi omkhulu online wabantu abane-psoriasis ne-PsA. Ungabuza imibuzo onayo mayelana ne-PsA kulayini wayo wosizo, i-Patient Navigation Center. Ungathola futhi isisekelo ku-Facebook, Twitter naku-Instagram.

I-Arthritis Foundation futhi inemininingwane ehlukahlukene mayelana ne-PsA kuwebhusayithi yayo, kufaka phakathi amabhulogi namanye amathuluzi nezinsizakusebenza eziku-inthanethi zokukusiza uqonde futhi uphathe isimo sakho. Futhi banesithangami esiku-inthanethi, i-Arthritis Introspective, esixhuma abantu ezweni lonke.

Amaqembu okusekela aku-inthanethi angakulethela induduzo ngokukuxhumanisa nabantu abadlula kokuhlangenwe nakho okufanayo. Lokhu kungakusiza ukuthi uzizwe unganakiwe kangako, uthuthukise ukuqonda kwakho i-PsA, futhi uthole impendulo ewusizo mayelana nezindlela zokwelashwa. Vele wazi ukuthi imininingwane oyitholayo akufanele ithathe isikhundla sezeluleko zochwepheshe bezokwelapha.

Uma ungathanda ukuzama iqembu lokusekela, udokotela wakho angakwazi ukuncoma iqembu elifanele. Cabanga kabili ngokujoyina noma yimaphi amaqembu athembisa ukwelashwa kwesimo sakho noma anemali ephezulu yokujoyina.

2. Yakha inethiwekhi yokusekela

Thuthukisa umbuthano womndeni nabangane abasiqondayo isimo sakho nabangakusiza lapho kudingeka. Noma kungena ngemisebenzi yasendlini noma ukutholakala ukulalela uma uzizwa uphansi, kungenza impilo ibe lula kancane kuze kube yilapho izimpawu zakho sezithuthuka.

Ukuba phakathi kwabantu abakhathalelayo futhi uxoxe ngokukhululekile ngezinkathazo zakho nabanye kungakusiza uzizwe uqinisekiswa kakhulu futhi ungelona isizungu.

3. Vulela udokotela wakho ngokukhululekile

I-rheumatologist yakho kungenzeka ingazithathi izimpawu zokukhathazeka noma ukucindezeleka ngesikhathi sokuqokwa kwakho. Ngakho-ke, kubalulekile ukuthi ubazise ukuthi uzizwa kanjani ngokomzwelo. Uma bekubuza ukuthi uzizwa kanjani, khululeka futhi uthembeke kubo.

INational Psoriasis Foundation inxusa abantu abane-PsA ukuthi bakhulume ngokukhululekile ngobunzima babo obungokomzwelo nodokotela babo. Udokotela wakho angabe esenquma ukuthi iyiphi indlela engcono yokwenza, njengokukuthumela kuchwepheshe ofanele wezempilo yengqondo.

4. Funa ukunakekelwa kwezempilo yengqondo

Ngokuya ngocwaningo lwango-2016, abantu abaningi abane-PsA ababezichaze njengabacindezelekile abakutholanga ukwesekwa kwengcindezi yabo.

Ababambe iqhaza ocwaningweni bathole ukuthi ukukhathazeka kwabo kaningi kuyachithwa noma kuzohlala kufihliwe kubantu ababazungezile. Abaphenyi baphakamise ukuthi odokotela bezengqondo abaningi, ikakhulukazi labo abanentshisekelo kwi-rheumatology, kufanele babambe iqhaza ekwelapheni i-PsA.

Ngokungeziwe ku-rheumatologist yakho, funa isazi sokusebenza kwengqondo noma umelaphi ukuze akusekele uma uhlangabezana nezinkinga zempilo yengqondo. Indlela engcono kakhulu yokuzizwa ungcono ukwazisa odokotela bakho ukuthi imiphi imizwa ohlangabezana nayo.

5. Ukwesekwa kwendawo

Ukuhlangana nabantu emphakathini wakho abane-PsA kuyithuba elihle lokuthuthukisa inethiwekhi yokusekela yendawo. I-Arthritis Foundation inamaqembu okweseka asekhaya ezweni lonke.

INational Psoriasis Foundation futhi ibamba imicimbi ezweni lonke ukuthola imali yocwaningo lwePsA. Cabanga ukuhambela le micimbi ukukhulisa ukuqwashisa kwe-PsA futhi uhlangane nabanye abanesimo.

6. Ezemfundo

Funda okuningi ngangokunokwenzeka mayelana ne-PsA ukuze ukwazi ukufundisa abanye ngalesi simo futhi uqaphelise noma ngabe uyaphi. Thola ngazo zonke izindlela zokwelapha ezahlukahlukene, futhi ufunde ukuthi ungazibona kanjani zonke izimpawu nezimpawu. Futhi hlola amasu okuzisiza njengokunciphisa isisindo, ukuvivinya umzimba, noma ukuyeka ukubhema.

Ukucwaninga lonke lolu lwazi kungakwenza uzizwe uqiniseka ngokwengeziwe, ngenkathi kusiza abanye ukuthi baqonde futhi bazwelane nalokhu obhekene nakho.

Ukudla okudlela endlini

Ungazizwa ukhungathekile njengoba ulwa nezimpawu zomzimba ze-PsA, kepha awudingi ukubhekana nakho wedwa. Kunezinkulungwane zabanye abantu laphaya abadlula kwezinye zezinselelo ezifana nezakho. Unganqikazi ukufinyelela emndenini nakubangane, futhi wazi ukuthi kuhlala kukhona umphakathi oku-inthanethi laphaya ukukusekela.