Ungakutholaphi ukuxhaswa ngeHidradenitis Suppurativa

-Delile

• Thola iqembu lokusekela
• Yakha umbuthano wabangane
• Thola owelapha
• Ukudla okudlela endlini

I-Hidradenitis suppurativa (HS) ibangela ukuqubuka okubukeka njengezinduna noma amathumba amakhulu. Ngenxa yokuthi lesi simo sithinta isikhumba sakho futhi ukuqubuka kwesinye isikhathi kubangela iphunga elibi, i-HS ingenza abanye abantu bazizwe benamahloni, becindezelekile noma benamahloni.

I-HS ivame ukukhula ngesikhathi sokuthomba, okungaba yisigaba sokuphila esisengozini ngokomzwelo. Ukuba nalesi simo kungaba nomthelela omubi endleleni ocabanga ngayo wena nomzimba wakho. Abantu abangama-46 abane-HS bathole ukuthi lesi simo sithinte kakhulu isithombe somzimba wabantu.

Izinkinga zezithombe zomzimba zingaholela ekucindezelekeni nasekukhathazekeni, okuvame ukubonakala kubantu abane-HS. Kutholwe ukuthi amaphesenti ayi-17 abantu abanalesi simo babhekana nokudangala, futhi cishe amaphesenti ama-5 aba nokukhathazeka.

Ukubona udokotela wesikhumba nokuqala ukwelashwa kungenye indlela yokuzizwa ungcono. Ngenkathi welapha izimpawu zomzimba ze-HS, kubalulekile futhi ukubheka impilo yakho engokomzwelo. Nazi izindawo ezimbalwa ongabhekela kuzo ukwesekwa, nokukusiza ukubhekana nezimo ezinzima kakhulu zokuphila nokugula okungalapheki okubonakalayo.

Thola iqembu lokusekela

I-HS ivame kakhulu kunalokho ongase ucabange. Cishe umuntu oyedwa kwabayi-100 une-HS, kodwa kusengaba nzima ukuthola umuntu onalesi sifo ohlala eduze nawe. Ukungazi omunye umuntu one-HS kungakwenza uzizwe unesizungu futhi ukhishwe inyumbazane.

Iqembu lokusekelana liyindawo enhle yokuxhumana nabanye abantu abane-HS. Kulesi sikhala esiphephile, ungaba izindaba zakho ngaphandle kokuzizwa unamahloni. Ungase futhi uthole izeluleko eziwusizo kubantu abaphila ne-HS ngokuthi ungasiphatha kanjani lesi sifo.

Ukuze uthole iqembu lokwesekwa elizojoyina, qala ngokubuza udokotela ozokwelapha i-HS yakho. Ezinye izibhedlela ezinkulu zingasingatha elinye lala maqembu. Uma eyakho ingakwenzi, finyelela enhlanganweni ye-HS.

Ithemba le-HS lingenye yezinhlangano ezinkulu ze-HS zokumela. Iqale ngo-2013 njengeqembu elilodwa lendawo lokweseka. Namuhla, le nhlangano inamaqembu okusekela emadolobheni afana ne-Atlanta, New York, Detroit, Miami, neMinneapolis, kanye naku-inthanethi.

Uma ungenalo iqembu lokuxhasa i-HS endaweni yangakini, yijoyine ku-Facebook. Ingosi yokuxhumana nabantu inamaqembu amaningi asebenzayo, kufaka phakathi:

• IHS Support Group
• I-HS Global International Support Group
• I-Hidradenitis Suppurativa Loss Weight, Motivation, Support & Isikhuthazo
• HS Yima Isisekelo

Yakha umbuthano wabangane

Kwesinye isikhathi ukusekelwa okuhle kakhulu kuvela kubantu abakwazi kangcono. Abangane, amalungu omndeni, ngisho nomakhelwane obathembayo bangaba amabhodi amahle wokuzwakala lapho ukhungathekile noma ucasukile.

Omunye wabantu abahlala ne-HS ubike ukusekelwa komphakathi ngabangane njengendlela ethandwa kakhulu yokubhekana nalokhu. Vele uqiniseke ukuthi uzungeze nabantu abahle. Noma ngubani ongaveli lapho ubadinga, noma okwenza uzizwe ungazethembi ngawe, akakufanele ukuba nabantu.

Thola owelapha

Imiphumela ye-HS ingaba nomthelela cishe kuzo zonke izingxenye zempilo yakho, kufaka phakathi ukuzethemba kwakho, ubudlelwano, impilo yezocansi, nomsebenzi. Lapho ukucindezeleka kuba nzima kakhulu ukusingatha, finyelela kochwepheshe, njengodokotela wezengqondo, umeluleki, noma umelaphi.

Ochwepheshe bezempilo yengqondo banikela ngezinsizakalo ezinjengokwelashwa kokukhuluma kanye nokwelashwa kokuziphatha okuqondayo (i-CBT) ukukusiza ukuthi uqambe kabusha noma imiphi imicabango emibi onayo ngesimo sakho. Ungahle uthande ukukhetha umuntu onolwazi lokwelapha izifo ezingamahlalakhona. Abanye abelaphi bagxile ezindaweni ezifana nobudlelwano noma impilo yezocansi.

Uma usola ukuthi ungahle ube nokudangala, bheka isazi sokusebenza kwengqondo noma udokotela wezifo zengqondo ukuze uhlolwe. Isazi sokusebenza kwengqondo singanikela ngezindlela ezahlukahlukene zokwelashwa ukuze zikwelaphe, kepha kwezinye izazi udokotela wezifo zengqondo kuphela ongahlinzeka ngama-anti-depressants uma uwadinga.

Ukudla okudlela endlini

I-HS ingaba nemiphumela yangempela empilweni yakho engokomzwelo. Njengoba ulapha izimpawu zangaphandle, qiniseka ukuthi uthola nosizo nganoma yiziphi izingqinamba zengqondo ezivela, kufaka phakathi ukudangala nokukhathazeka.