Ngibhekana Kanjani Ne-Primary Progressive MS

Noma uqonda ukuthi iyini i-PPMS nemiphumela yayo emzimbeni wakho, kunezikhathi lapho ungazizwa uwedwa, ukhishwe inyumbazane futhi mhlawumbe uphelelwe yithemba. Ngenkathi ukuba nalesi simo kuyinselele ukusho okuncane, le mizwa ijwayelekile.

Kusukela ekulungisweni kokwelashwa kuya ekuguqukeni kwendlela yokuphila, impilo yakho izogcwala ukulungiswa. Kodwa lokho akusho ukuthi kufanele ulungise ukuthi ungubani njengomuntu ngamunye.

Noma kunjalo, ukuthola ukuthi abanye abafana nawe ubhekana kanjani nokulawula isimo kungakusiza uzizwe usekelwa kakhulu ohambweni lwakho lwe-PPMS. Funda lezi zingcaphuno ezivela emphakathini wethu we-Living with Multiple Sclerosis Facebook bese ubona ukuthi ungenzani ukubhekana ne-PPMS.

“Qhubeka uphokophele phambili. (Kulula ukusho, ngiyazi!) Iningi labantu aliqondi. Abanawo ama-MS. ”
– UJanice Robson Anspach, ohlala ne-MS

“Ngokwethembeka, ukwamukelwa kuyisihluthulelo sokubhekana - {textend} ukuthembela ekukholweni nasekusebenziseni ithemba nokucabanga ngekusasa lapho ukubuyiselwa kungenzeka khona. Ungalahli ithemba."
– UTodd Castner, ohlala ne-MS

“Ezinye izinsuku zinzima kakhulu kunezinye! Kunezinsuku engilahlekile ngazo kakhulu noma ngifuna ukunikela ngikwenze ngakho konke! Kwezinye izinsuku ubuhlungu, ukudangala, noma ubuthongo kuyangilawula. Angikuthandi ukuthatha izindondo. Kwesinye isikhathi ngifuna ukuyeka ukuzithatha zonke. Bese ngikhumbula ukuthi kungani ngilwa, isizathu sokuthi ngidudule ngiqhubeke. ”
– UCrystal Vickrey, ohlala ne-MS

“Hlala ukhuluma nothile ngendlela ozizwa ngayo. Lokhu kukodwa kuyasiza. ”
– UJeanette Carnot-Iuzzolino, ohlala ne-MS

“Usuku ngalunye ngiyavuka ngizibekele imigomo emisha futhi ngiyalwazisa usuku ngalunye, noma ngabe ngisezinhlungwini noma ngizwa kahle.”
– UCathy Sue, ohlala ne-MS