Lona wesifazane Wayecabanga Ukuthi Unokukhathazeka, Kodwa Empeleni Kwakuyisifo Senhliziyo Esingavamile

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UHeidi Stewart wabhukuda ngokuncintisana kusukela eneminyaka engu-8 ubudala. Njengabadlali abaningi, wazibonela ama-jitters ngemuva komjaho, wayehlala ezwa ukuthi inhliziyo yakhe ishaya isuka esifubeni sakhe kuze kube sezingeni lokungakhululeki-kepha wayehlala eyishayela kuze kube yimithambo.

Lapho eba neminyaka engu-16, lowo muzwa wokungakhululeki waphumela ezikhathini ezimbalwa zokuquleka—futhi uHeidi waqala ukuzibuza ukuthi kwakungaphezu kokukhathazeka yini. “Ngikhumbula isigameko esisodwa ikakhulukazi,” kusho uHeidi Umumo. "Ngangikulo mhlangano omkhulu futhi ngaphuma echibini ngemva kokuqhuba kahle kakhulu futhi umngane wami wagijima wangigona. Ngokushesha ngawela ezingalweni zakhe isikhathi eside ngokwanele kwaze kwabizwa abezimo eziphuthumayo; kwakuyilolu vivinyo olukhulu."

Ngemuva kwalokho, umama kaHeidi uthathe isinqumo sokumyisa kudokotela wenhliziyo yezingane ukuze ahlolwe. "Siye lapho ukuyokwenza uchungechunge lwezivivinyo, sizama ukumboza zonke izisekelo zethu," kusho uHeidi. "Kwatholakala ukuthi nginokukhathazeka, futhi udokotela wami wangitshela ukuthi akaboni lutho olungalungile enhliziyweni yami." Nakuba udokotela ayekhathazekile ngokuthi uHeidi wayephelelwa amandla ngaso sonke isikhathi, wavele wamtshela ukuthi akadle amanzi amponjwana futhi adle kangcono.

Lokhu kuxilongwa kwenza uHeidi wazizwa sengathi ulahlekelwa ingqondo. Uthi: “Ngangingumdlali ovelele ngeminyaka yami. "Bengivele ngidle kahle ngendlela emangalisayo futhi ngiphuze amanzi amaningi ngenkathi ngiziqeqesha futhi ngemuva kwabaqeqeshi bethu abasenzile. Ngakho-ke bengazi ukuthi akuyona inkinga leyo. Bekuvele kungikhathaza ukwazi ukuthi sekufanele ngibuyele ekhaya futhi, ngemuva kokubiza abazali bami kanjalo imali eningi, azikho izimpendulo."

Ngemuva kwamasonto ambalwa, uHeidi wayesiza ukulengisa izinhliziyo zamaphepha abomvana ezungeze isikole ngoSuku Lwezithandani lapho eqala ukuzizwa edlula futhi. “Ngizamile ukubamba isibambo somnyango phambi kwami ​​nokugcina engikukhumbulayo ukuwa eceleni,” kusho uHeidi. Ikhanda lakhe liphantse lakhumbula ukushaya umshini wokukopisha.

Uthishanhloko obambisene naye wezwa ukuwa weza wazosiza, kepha akatholanga nhliziyo. Uqale i-CPR ngokushesha wabiza umhlengikazi wesikole, ofike ne-automated external defibrillator (AED), idivaysi ephathekayo esindisa impilo, washayela i-911.

"Ngangikulungele lokhu," kusho uHeidi. "Bengingasaphefumuli negazi beliphuma emlonyeni."

Ngokomtholampilo, uHeidi wayefile. Kodwa uthishanhloko nomhlengikazi baqhubeka nokwenza i-CPR futhi bamethusa nge-AED amahlandla amathathu. Ngemuva kwemizuzu eyisishiyagalombili yonke, uHeidi ubuyelwe yisisu futhi waphuthunyiswa esibhedlela lapho atshelwa khona ukuthi uzobanjwa yinhliziyo ngokuzumayo. (Okuhlobene: UBob Harper Usikhumbuza Ukuthi Ukuhlaselwa Yinhliziyo Kungehlela Noma ngubani)

E-ICU, odokotela bezinhliziyo benza i-echocardiogram, i-electrocardiogram, kanye ne-Cardio MRI ekhombisa izicubu ezibomvu egumbini elingakwesokudla lenhliziyo kaHeidi. Lesi sicubu esibomvu sabangela uhlangothi lwangakwesokudla senhliziyo kaHeidi ukuthi lube lukhulu kunesobunxele, ngemuva kwalokho luvimbe amasiginali avela ebuchosheni bakhe aye egumbini lakhe langezansi kwesokudla. Yilokhu okwaholela ekuqulekeni nasekushayeni kwenhliziyo okungajwayelekile okwenza uHeidi acabange ukuthi ukhathazekile.

Lesi simo saziwa ngokusemthethweni njenge-arrhythmogenic right ventricular dysplasia / cardiomyopathy, noma i-ARVD / C. Lokhu kukhubazeka kwenhliziyo yofuzo kuthinta cishe abantu abayisithupha kwabangu-10 000. Futhi ngenkathi kungavamile, kuvame ukutholakala kabi. "I-Misdiagnosis ijwayelekile, ikakhulukazi lapho izimpawu zingacacile, futhi ingalingisa ezinye izimo ezivame kakhulu njengokukhathazeka," kusho uSuzanne Steinbaum, M.D., umqondisi wezempilo yenhliziyo yabesifazane eNorthwell Lenox Hill Hospital eNew York City. "Yingakho ezimeni ezinjengalezi kubaluleke kakhulu ukwazi umlando womndeni wakho futhi uxhumane nodokotela wakho, kanye nokunaka, ukubhala izimpawu nezimpawu ezitholakalayo nokuthi zenzeka nini." (Nazi izinto ezinhlanu okungenzeka awuzazi mayelana nempilo yenhliziyo yabesifazane.)

Ngemva kokuxilongwa kwakhe, u-Heidi wahlinzwa lapho odokotela bafaka khona i-defibrillator yangaphakathi ene-pacemaker eyakhelwe ngaphakathi ukuze ashaqise inhliziyo yakhe uma eboshwa. Alikho ikhambi le-ARVD / C, okwakusho ukuthi uHeidi wayedinga ukwenza izinguquko eziningi empilweni.

Namuhla, akavunyelwe ukucindezelwa kakhulu noma enze noma yini engadala ukuthi inhliziyo yakhe ishaye kakhulu. Uthatha ama-beta-blocker nsuku zonke ukusiza ukwehlisa umfutho wegazi futhi akasakwazi ukubhukuda ngokuncintisana. Ukwenza imisebenzi eyedwa kuvinjelwe ngokuphelele. (Okuhlobene: Izinto Ezimangazayo Ezibeka Inhliziyo Yakho Engcupheni)

Phakathi neminyaka emihlanu edlule, uHeidi usebenze kanzima ukuze ajwayelane nokuphila kwakhe okusha lapho izinto ayekade ezithanda zimthathela unyawo. Kepha ngezindlela eziningi, unenhlanhla emangalisayo. "Kwezinye izimo, awazi nokuthi isiguli sine-ARVD / C kuze kube ngemuva kokuhlolwa kwesidumbu," kusho uDkt Steinbaum. "Yingakho kubaluleke kakhulu ukuthi uzikhuthaze ngokuthola izimpendulo kunoma imiphi imibuzo, kufaka phakathi isizathu esenza ukuthi izimpawu zivele. Ukuba ngummeli wakho omuhle nokwenza ukuhlolwa kokuxilongwa kwenziwe uma uzizwa kufanele kufanele yingxenye ebaluleke kakhulu yokuthola ukunakekelwa ungase udinge."

Kungakho uHeidi, manje oseyiGo Go Red Real Woman we-American Heart Association, abelana ngendaba yakhe ukusiza ukukhuthaza nokufundisa abesifazane ukusiza ukuqeda umbulali wethu wokuqala: isifo senhliziyo nemithambo yegazi. “Nginenhlanhla yokuba lapha, kodwa abanye abantu besifazane abaningi abekho,” usho kanje. "Njengamanje isifo senhliziyo nemithambo yegazi sibulala cishe owesifazane oyedwa njalo ngemizuzwana engu-80 e-US Nakuba lokho kusabisa, izindaba ezinhle ukuthi amaphesenti angu-80 alezo zenzakalo ayengavinjelwa ukube abantu bebelalela imizimba yabo, befunda, futhi benza izinguquko zokuphila. Ngakho lalela umzimba wakho bese ulwela ukuthola usizo ocabanga ukuthi uyaludinga. " (Okuhlobene: Idatha entsha yeFitbit ithola ukuthi abasebenzisi e-U.S. Banezilinganiso zenhliziyo eziphakeme kakhulu)

UHeidi ubuye asebenze ukukhuthaza ukuhlolwa kwenhliziyo kwabadlali abasebasha. Unethemba lokuthi lezi zixwayiso zizovimbela abanye abasubathi ukuthi bangabanjwa yinhliziyo ngokuzumayo futhi kungasindisa izimpilo zabantu abasha.

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