Amaforamu ama-8 e-MS Lapho Ungathola Ukusekelwa

-Delile

• Ukuxhumeka kwe-MS
• MSWorld
• MyMSTeam
• IziguliLikeMe
• Le yiMS
• Amakhasi we-Facebook
• Shift MS
• Ukudla okudlela endlini

Ukubuka konke

Ngemuva kokuxilongwa nge-multiple sclerosis (MS), ungazithola ufuna iseluleko kubantu ababhekana nokuhlangenwe nakho okufana nokwakho. Isibhedlela sangakini singakwethulela iqembu lokusekelwa. Noma, mhlawumbe uyazi umngane noma isihlobo esitholwe sine-MS.

Uma udinga umphakathi obanzi, ungaphendukela ku-inthanethi nezinkundla ezahlukahlukene nezinhlangano zokusekela ezitholakala ezinhlanganweni ze-MS kanye namaqembu eziguli.

Lezi zinsizakusebenza zingaba yindawo enhle yokuqala ngemibuzo. Ungafunda futhi izindaba ezivela kwabanye abane-MS futhi ucwaninge ngayo yonke into yesifo, kusuka ekuhlolweni nasekwelashweni ukubuyela emuva nasekuqhubekeni.

Uma uzithola udinga ukwesekwa, lezi zinkundla ze-MS eziyisishiyagalombili ziyindawo enhle yokuqala.

Ukuxhumeka kwe-MS

Uma usanda kutholakala une-MS, ungaxhumana nabantu abaphila nalesi sifo e-MS Connection. Lapho, uzothola abantu abaqeqeshwe ukuphendula imibuzo yakho. Lezi zixhumanisi zokuxhaswa kontanga zingaba ngumthombo omkhulu ngokushesha ngemuva kokuxilongwa.

Ama-Subgroups ku-MS Connection, njenge-Newly Diagnosed Group, enzelwe ukuxhuma abantu abafuna ukwesekwa noma ulwazi ngezihloko ezithile ezihlobene nalesi sifo. Uma kukhona othandekayo okusizayo noma okunakekelayo, bangathola ukuthi i-Carepartner Support Group iwusizo futhi iyafundisa.

Ukufinyelela amakhasi weqembu nemisebenzi, uzodinga ukudala i-akhawunti nge-MS Connection. Amaforamu ayimfihlo futhi kufanele ungene ukuze uzibone.

MSWorld

I-MSWorld yaqala ngo-1996 njengeqembu labantu abayisithupha egumbini lokuxoxa. Namuhla, leli sayithi liqhutshwa amavolontiya futhi lisebenza abantu abangaphezu kuka-220,000 abane-MS emhlabeni wonke.

Ngaphezu kwamagumbi okuxoxa namabhodi emiyalezo, i-MSWorld inikeza isikhungo sokuphila kahle nesikhungo sokudala lapho ungabelana khona ngezinto ozidalile futhi uthole nezeluleko zokuphila kahle. Ungasebenzisa futhi uhlu lwezinsiza zesiza ukufuna imininingwane ngezihloko ezivela emithini kuya kuzinsiza eziguqukayo.

MyMSTeam

I-MyMSTeam yinethiwekhi yokuxhumana nabantu abane-MS. Ungabuza imibuzo esigabeni sabo se-Q & A, ufunde okuthunyelwe, futhi uthole ukuqonda kwabanye abantu abaphila nalesi sifo. Ungathola futhi abanye eduze kwakho abahlala ne-MS futhi ubone izibuyekezo zansuku zonke abazithumelayo.

IziguliLikeMe

Isiza sePatientsLikeMe siyinsiza yabantu abanezimo eziningi zezokwelapha nezinkinga zezempilo.

Isiteshi se-MS senzelwe ngqo abantu abane-MS ukuthi bafunde komunye nomunye futhi bathuthukise amakhono okuphatha amakhulu. Amalungu angaphezu kuka-70,000 ayingxenye yaleli qembu. Ungahlunga ngamaqembu anikezelwe kuhlobo lwe-MS, ubudala, kanye nezimpawu.

Le yiMS

Ngokwengxenye enkulu, amabhodi ezingxoxo ezindala anikeze indlela yokuxhumana nomphakathi. Kodwa-ke, ibhodi lezingxoxo Le yi-MS ihlala isebenza kakhulu futhi ihlanganyela emphakathini we-MS.

Izingxenye ezinikezelwe ekwelashweni nasempilweni zikuvumela ukuthi ubuze imibuzo futhi uphendule abanye. Uma uzwa ngokwelashwa okusha noma ngentuthuko engaba khona, ungahle uthole intambo ngaphakathi kwalesi sithangami ezokusiza ukuthi uqonde izindaba.

Amakhasi we-Facebook

Izinhlangano eziningi namaqembu omphakathi abamba amaqembu e-MS Facebook ngamanye. Amaningi akhiyiwe noma ayimfihlo, futhi kufanele ucele ukujoyina futhi uthole imvume yokuphawula nokubona okunye okuthunyelwe.

Leli qembu lomphakathi, eliphethwe yi-Multiple Sclerosis Foundation, lisebenza njengesithangami sabantu sokubuza imibuzo nokuxoxa izindaba emphakathini onamalungu acishe abe ngama-30,000. Abaphathi beqembu basiza ukulinganisela okuthunyelwe. Babuye babelane ngamavidiyo, banikeze imininingwane emisha, futhi bathumele izihloko ezizodingidwa.

Shift MS

IShiftMS ihlose ukunciphisa ukwehlukaniswa kwabantu abaningi abane-MS bazizwa. Le nethiwekhi yokuxhumana enempilo isiza amalungu ayo ukuthola ulwazi, ukwelashwa ngocwaningo, nokwenza izinqumo zokuphatha lesi simo ngamavidiyo nezithangami.

Uma unombuzo, ungathumela amalungu angaphezu kuka-20 000. Ungapheqa futhi ngezihloko ezahlukahlukene osekuxoxwe ngazo. Eziningi zivame ukubuyekezwa ngamalungu omphakathi weShiftMS.

Ukudla okudlela endlini

Akuyona into engavamile ukuzizwa uwedwa ngemuva kokuthola ukuxilongwa kwe-MS. Kunezinkulungwane zabantu ku-inthanethi ongaxhumana nabo ababhekana nezinto ezifanayo nezakho futhi babelana ngezindaba zabo nezeluleko. Beka uphawu lokubekisa lezi zinkundla ukuze ukwazi ukubuyela kuzo uma udinga ukwesekwa. Khumbula ukuxoxa njalo nganoma yini oyifunda ku-inthanethi nodokotela wakho ngaphambi kokuzama.