Indlela Abezenhlalo Abangisiza Ngayo Ekuhambeni Kwami Ngomdlavuza

Uwedwa. Ihlukaniswe. Ukhungathekile. Le yimizwa yokuthi noma ngubani othola ukuxilongwa ngumdlavuza kungenzeka abhekane nayo. Le mizwa futhi iyizimbangela zokufuna ukuxhumana kwangempela, komuntu siqu nabanye abakuqondayo lokho ababhekene nakho.

Sesivele sazi kusuka ku- Isimo Sezwe Lomdlavuza ukuthi iningi elikhulu kakhulu - {textend} 89 phesenti - {textend} baphendukela ku-inthanethi ngemuva kokutholakala benomdlavuza. Futhi ngoba umuntu ojwayelekile uzochitha iminyaka engaphezu kwemihlanu yempilo yakhe ezinkundleni zokuxhumana, kulungile ukuthi laba bantu baphendukela kakhulu ku-Facebook, Twitter, Instagram, Snapchat, naku-YouTube ukuthola izeluleko, ukwesekwa nokukhuthazwa.

Imithombo yezokuxhumana ingaba yinkemba esika nhlangothi zombili, futhi abaningi bathola ukuthi ukungena ngemvume kungaba yingozi kakhulu kunokuba lusizo ngemuva kwesehlakalo esibuhlungu.

Vele, ukuba nempilo yezenhlalo akugcini nje ngokuxhumana nomphakathi. Ukuya eqenjini lokuxoxisana ngesiguli somdlavuza, ukuzama isigaba esisha se-yoga emphakathini wakho, noma ngisho nokubamba ikhofi nomngani onakekela ngokweqiniso zonke izindlela zokuxhumana nabantu nokuthola ithemba nogqozi noma ngabe ubhekene nani. Ekugcineni, kumayelana nokwenza ukuxhumana - {textend} akunandaba noma ngabe baxhumekile ku-inthanethi noma ngomuntu uqobo.

Kulaba bantu abane abalandelayo, ukuxilongwa komdlavuza kwakusho ukuphendukela eziteshini zabo zemithombo yezokuxhumana kunokuba kude nabo. Funda izindaba zabo ezikhuthazayo ngezansi.

Ukuthola ukwesekwa ezinkundleni zokuxhumana bekungenakugwemeka kuStephanie Seban ngenkathi ethola ukuthi uneminyaka engaphezu kweyisithupha edlule.

"I-Google kanye ne-intanethi kukonke kubonakale kusabisa kakhulu," esho. "Ngenxa yokuthi ngitholwe nginomdlavuza webele wesigaba 4, noma yikuphi ukuseshwa kungakhipha izindaba ezingezinhle nezingathembisi namaqiniso aphathelene namathuba okusinda kwami."

UFacebook no-Instagram bekuyizindawo ezimbili angaya kuzo ukuze axhumane nabanye besifazane abebesohambweni olufana nolwakhe. Kwakuyindlela yokuthi azizwe enganakiwe.

“Ukuba nomphakathi kungaphilisa kakhulu. Sengike ngahlangana nabantu abangakholeki esengibabiza ngabangani ezinkundleni zokuxhumana, ”kusho yena.

Kepha kube khona ukubuyela emuva ekuseshweni komphakathi kukaSeban: Wathola kunzima ukuthola ukwesekwa kwabesifazane abasebancane abanomdlavuza wesigaba 4. "Ababaningi abantu abakhuluma ngesigaba sesine sesifo se-metastatic, ingasaphathwa eyokuthumela ngaso," esho.

Lesi bekuyisizathu sakhe esiyinhloko sokuqala iwebhusayithi yakhe. Umsebenzi wakhe waba ukufunda konke abengakwenza mayelana nokuvikela nokwelashwa komdlavuza, nokunikeza izinsiza ezisizayo kubantu abadala ababhekene nezifo zemetastatic.

“Isimo sami nokuxilongwa kwami ​​kuhlukile kakhulu. Lokhu kungigqugquzele ukuthi ngikwenze kube yimpilo yami injongo yokuqwashisa thina ziguli ze-MBC nokwenza abantu bazi ukuthi umdlavuza webele awusona isifo 'esisodwa esilingana nakho konke'. Kuthathe isikhathi ukuthi ngikhiphele ngaphandle udaba lwami ngoba angibukeki ‘ngigula,’ ”kusho yena.

Funda kabanzi ngoSeban ku-Facebook naku-Instagram, kanye nangebhulogi yakhe.

UDickinson wahlinzwa okokuqala ngomdlavuza ngosuku lwakhe lokuzalwa lwe-19. Akuyona into noma ngubani osemusha angayifisa, kepha kwakuyinto uDickinson okwadingeka abhekane nayo cishe masinyane ngemuva kokuthola ukuxilongwa komdlavuza ezinsukwini ezintathu ngaphambili.

Esikhundleni sokuphendukela ngaphakathi nokuba yimfihlo ngokuxilongwa kwakhe, waphendukela esiteshini sakhe esivele sithandwa se-YouTube ukuthumela amavidiyo ngohambo lwakhe.

"Ngangifuna wonke umuntu owayengilandela azi ukuthi kungani kungeke kube khona ama-video anezindikimba zezempilo esiteshini esinempilo nesinempilo," esho. "Bengifuna ukuba yisibonelo futhi nginikeze abantu ukuqonda ngokwenzekayo uma benomdlavuza ofanayo nowami noma belashwa ngamakhemikhali njengami."

Ukuphumela obala ngomdlavuza wakhe wamasende kwakuyisinyathelo esinesibindi. Ngemuva kwakho konke, ngumuntu oyedwa kuphela kwabesilisa abangama-263 ozoba nalolu hlobo lomdlavuza ngesikhathi sokuphila kwabo. Futhi amaphesenti ayi-7 kuphela alabo abatholakala ukuthi yizingane noma intsha.

UDickinson uthole ukuthi imithombo yezokuxhumana ilusizo ekwenzeni ulwazi oluthe xaxa ngalesi sifo, kanye nokwenza umndeni wakhe - {textend} ikakhulukazi ogogo nomkhulu wakhe - {textend} bavuselelwe. Into abengayilindelanga isibalo sabantu angabazi abathulule izinhliziyo zabo ukukhombisa ukumeseka.

"Umuntu oyedwa wayengithumelela izingcaphuno ezikhuthazayo cishe nsuku zonke ngenkathi ngibhekene nomdlavuza izinyanga eziyisithupha," kusho uDickinson.

Ngaphezu kwalokhu, i-YouTuber ayithandayo nentshisekelo yokuzivocavoca ishayele ngaphezu kwamahora amabili nohhafu ukuhlangana noDickinson ekuseni ekhemotherapy yakhe.

Njengosindile kumdlavuza, uDickinson manje usegxile esiteshini sakhe se-YouTube sokuqina futhi ubonga labo abamsizile ngalowo nyaka onzima. Uzomthola naku-Instagram.

KuCheyann Shaw, kuthathe amahora angama-24 kuphela ngemuva kokuxilongwa umdlavuza wakhe we-ovari ukuthi ahlole imithombo yezokuxhumana ukuze athole usizo.

"Bengivele nginomzimba omncane wokuzivocavoca ngokulandela ezinkundleni zokuxhumana, kodwa bengazi ukuthi nginempi nohambo obekufanele lubhalwe phansi," esho.

Uqophe i-video log yakhe ebhala ngokuxilongwa kwakhe komdlavuza wayithumela esiteshini sakhe se-YouTube. Kusukela kuleyo vidiyo yokuqala esikhathini esingaphezu konyaka esedlule, uShaw uqhubekile nokuthumela izibuyekezo ekwelashweni kwakhe ngamakhemikhali kanye namanye amavidiyo ashukumisayo njengamathiphu okuhlala unethemba, ukuthi ungabhekana kanjani nezinkinga, namasu okuqina.

"Isizathu esenza ngaphendukela ezinkundleni zokuxhumana futhi ngashintsha iziteshi zami zokuxhumana zaba iziteshi ezibhala ngohambo lwami yingoba bengifuna ukuba yizwi," kusho yena.

Ngaphandle kwe-YouTube, uShaw usebenzise i-Instagram neFacebook ukuxhumana nabanye ababebhekene nomdlavuza. Akazange abe nenhlanhla njalo kulezi ziteshi, noma kunjalo.

“Ngiphendukele ku-Instagram ikakhulu ukuze ngifinyelele kulabo abalwa nomdlavuza ngibone ukuthi abanazo yini izeluleko noma izeluleko, kepha lapho ngiya ku-Instagram, angikwazanga ukuthola abantu abafuna ukukhuluma ngempi yabo nokulwa kwabo, " uthe.

Noma kunjalo, akazange akuvumele lokhu kumhlise phansi. Wabona ukuthi umphakathi awakhile wenele ukumgcina eqhubeka.

“Ukuzigcina uqinile ngokomqondo kubalulekile njengomzimba wakho wokulwa nomdlavuza,” kusho yena. “Umqondo‘ womphakathi ’wangisiza ohambweni lwami lomdlavuza ngoba angikaze ngizizwe ngingedwa. Ngangazi ukuthi ngaso sonke isikhathi kwakukhona umuntu lapho engangiphendukela kuye onolwazi olufana nolwami futhi akwazi ukunginikeza izeluleko. ”

Funda kabanzi ngokuhlangenwe nakho kukaShaw ku-Instagram, bese ubheka irekhodi lakhe levidiyo esiteshini sakhe se-YouTube.

Kuthathe iminyaka engaphezu kwemibili ngaphambi kokuba uJessica DeCrisofaro atholakale ngokusemthethweni enesigaba 4B Hodgkin's lymphoma. Odokotela abaningi babengazibonanga kahle izimpawu zakhe, futhi bakususa lokho ayebhekene nakho njengokuthile komzimba noma i-acid reflux. Lapho ethola ukuxilongwa kwakhe, waya ku-inthanethi ukuthola izimpendulo.

"Ekuqaleni kokuxilongwa kwami, ngaphendukela kuGoogle ngokushesha ukuthola izimpendulo zokuthi impilo yami izokuba kanjani nokuthi ngangizokwazi kanjani ukubhekana nalokho okwakubonakala kuyinhlekelele esabekayo ngaleso sikhathi engabhekana nayo," esho. “Akuzange kubonakale kulungile, futhi ngathola ukuthi yayingekho incwadi yangempela yokuqondisa umdlavuza.”

Uthole amaqembu amaningi e-Facebook, kepha iningi lawo belingelona iqiniso, futhi bekunzima kuye ukuthi afunde okuthunyelwe ngokungakwenzi noma ukungakholelwa ekwelashweni. Lesi kwakuyisiqalo salokho okwakuzoba uhambo lwakhe olusha: Ukusiza nokukhuthaza ezinye iziguli ezinomdlavuza nge-akhawunti yakhe ye-blog ne-Instagram.

"Ngingumlandeli omkhulu kakhulu we-Instagram, ngoba ungabheka umaki we-hash womdlavuza wakho othize, bese uthola 'abangane bomdlavuza,'" kusho yena. “Kuyamangaza ukuthi ngihlangane nabanye babangani bami abakhulu ku-Instagram. Sonke sathola ukuxilongwa nokwelashwa sisonke. ”

Wabona kukho konke lokhu ukuthi umphakathi womdlavuza uyayithola ngempela, ngakho-ke wanquma ukubhala incwadi yakhe ethi, “Talk Cancer to Me,” yabanye ababhekana nalokhu ayebhekene nakho.

"Njengoba umndeni wakho nabangane bakho befuna ukukusiza, abaqondi ukuthi kunjani ngaphandle uma bekuzicathulweni zakho," esho. "Umphakathi womdlavuza ubhekane nakho konke, ubuhlungu, isicanucanu, ukulahleka kwezinwele, ukuzibuka esibukweni futhi ungakwazi ukuzibona, ukukhathazeka, ukudangala, i-PTSD ... konke."

Funda kabanzi ngohambo lukaDeCristofaro kubhulogi yakhe naku-Instagram.