Ukwenza Umehluko Lapho une-MS: Ungabandakanyeka Kanjani

-Delile

• Zivolontiye enhlanganweni engenzi nzuzo noma eqenjini lomphakathi
• Siza ukuqalisa iqembu lokusekela
• Yenza njengomeluleki wontanga
• Qoqa imali ngesizathu esihle
• Bamba iqhaza ocwaningweni
• Ukuthatha

Ukubuka konke

Ngabe ufuna izindlela zokusiza abanye abane-MS? Kuningi ongakunikeza. Noma ngabe isikhathi sakho namandla, ukuqonda nesipiliyoni, noma ukuzibophezela ekwenzeni ushintsho, ukunikela kwakho kungenza umehluko omuhle ezimpilweni zabanye ababhekene nalesi simo.

Ukuzithandela nakho kungaba nemiphumela emihle empilweni yakho. Ngokusho kweGreater Good Science Center e-UC Berkeley, ukusiza abanye kungasiza ekwandiseni injabulo yakho, kwakha ukuxhumana nabantu, futhi kuthuthukise nempilo yakho. Ukuzibandakanya emphakathini wakho kuyindlela enhle yokuhlangana nabanye abantu ngenkathi ubuyisela.

Nazi izindlela ezinhlanu ongazibandakanya ngazo.

Zivolontiye enhlanganweni engenzi nzuzo noma eqenjini lomphakathi

Kunezinhlangano eziningi namaqembu ezweni lonke ahlinzeka ngolwazi nezinye izindlela zokuxhasa abantu abane-MS. Iningi labo lithembele kumavolontiya ukusiza ukufeza umsebenzi wabo nokugcina imisebenzi yabo yansuku zonke.

Cabanga ukuxhumana nenhlangano yendawo, yesifundazwe, noma yezwe ukuze ufunde ngamathuba wokuzithandela. Bazise ngamakhono akho nezinto ozithandayo. Ngokuya ngamakhono akho, ukutholakala kwakho, kanye nezidingo zabo, ungahle ukwazi ukusiza:

• run umcimbi okhethekile noma fundraiser
• sebenzisa uhlelo lwamasonto onke noma lwenyanga
• lungiselela izinto zokufundisa noma zokufinyelela
• buyekeza iwebhusayithi yabo noma izinkundla zokuxhumana
• balungise noma benze imisebenzi yokuhlanza nokunakekela emahhovisi abo
• nikela ngobudlelwano bomphakathi, ukumaketha, ukubalwa kwezimali, noma iseluleko sezomthetho
• buyekeza ama-computer system noma ama-database abo
• faka izimvilophu noma unikeze amapheshana
• asebenze njengomkhulumeli wesiguli

Kunezinye izindlela eziningi ongakwazi ukusiza ngazo. Ukuze ufunde ukuthi ungawasebenzisa kanjani amakhono akho, xhumana nenhlangano onentshisekelo yokuzithandela nayo.

Siza ukuqalisa iqembu lokusekela

Uma unentshisekelo yokwenza ukuzibophezela okujwayelekile nokuqhubekayo, amaqembu amaningi okusekela athembele kubaholi bokuzithandela ukuze bahlale beqinile. Amanye amaqembu okusekela agxila kubantu abane-MS, kanti amanye avulekele amalungu omndeni.

Uma selivele likhona iqembu lokwesekwa endaweni yangakini, cabanga ukuxhumana nabaholi ukuze ufunde ukuthi akhona yini amathuba okuzibandakanya. Uma engekho amaqembu okusekela atholakala eduze kwakho, lesi kungaba yisikhathi esihle sokuqala. Ungase futhi ujoyine noma uqalise iqembu lokusekela online. Isibonelo, iNational Multiple Sclerosis Society ibamba amaqembu amaningi okusekela online.

Yenza njengomeluleki wontanga

Uma ukhetha ukuxhumana nabantu ubuso nobuso, ungenza umeluleki ontanga omuhle. Abeluleki bezontanga badonsa kokuhlangenwe nakho kwabo nge-MS, ukuze basize abanye bafunde ukubhekana nalesi simo. Banikeza indlebe enozwela nokusekelwa okungokomzwelo kubantu abangase bazizwe bekhungathekile, bebodwa, noma belahlekile.

Uma unentshisekelo yokuba umeluleki wontanga, cabanga ukuxhumana nomtholampilo wezokwelapha noma inhlangano engenzi nzuzo ukuze ufunde ukuthi ngabe basebenzela izinsizakalo zokweluleka kontanga kwabantu abane-MS. Isibonelo, iNational Multiple Sclerosis Society iyahlola futhi iqeqeshe amavolontiya ukuthi anikeze ukusekelwa kontanga ngocingo nange-imeyili.

Qoqa imali ngesizathu esihle

Uma ungakakulungeli ukuzibophezela kwesikhathi eside, kunezindlela eziningi ongasiza ngazo esikhathini esifushane. Isibonelo, imikhankaso yokuthola imali imvamisa idinga amahora ambalwa kuphela wesikhathi sakho.

Ukuhamba kwezinsizakalo neminye imicimbi yezemidlalo kungenye yezindlela ezithandwayo zokuqoqa imali ngezizathu zezokwelapha nezinhlangano ezingenzi nzuzo. Njalo entwasahlobo, iNational Multiple Sclerosis Society isebenzisa ama-MS Walks amaningi. Iphinde isingathe neminye imicimbi eyahlukahlukene yokuqoqa imali.

Imitholampilo yendawo, izibhedlela, namaqembu omphakathi nawo angaqhuba abaxhasi bezimali. Kwezinye izimo, kungenzeka ukuthi baqoqa imali yezinsizakalo ezihlobene ne-MS. Kwezinye izimo, kungenzeka ukuthi baqoqa imali yezinhlelo ezisiza abantu abanezimo ezahlukahlukene zezempilo. Noma ngabe usiza ukuqhuba umcimbi noma i-fundraiser, noma uqoqe izithembiso njengomhlanganyeli, kungaba yindlela emnandi yokungena.

Bamba iqhaza ocwaningweni

Abaphenyi abaningi baqhuba amaqembu okugxila, izingxoxo, nezinye izinhlobo zezifundo phakathi kwabantu abaphila ne-MS. Lokhu kungabasiza bafunde ukuthi isimo sibathinta kanjani abantu. Kungabasiza futhi ukuthi babone izinguquko kokuhlangenwe nakho nezidingo zamalungu omphakathi.

Uma unentshisekelo ekusizeni ukuqhubekisela phambili isayensi ye-MS, ungakuthola kwenelisa ukubamba iqhaza ocwaningweni locwaningo. Ukufunda ngezifundo zocwaningo endaweni yangakini, cabanga ukuxhumana nomtholampilo wendawo noma isikhungo socwaningo. Kwezinye izimo, ungabamba iqhaza ocwaningweni noma kwezinye izifundo ezenziwa online.

Ukuthatha

Noma ngabe amakhono noma isipiliyoni sakho usibekeleni, unokuthile okubalulekile ongakunikeza umphakathi wakho. Ngokunikela ngesikhathi sakho, amandla, nokuqonda, ungasiza ekwenzeni umehluko.