Ukuphatha izindleko ze-Hodgkin's Lymphoma Treatment

-Delile

• Ukukhokhiswa ngokwezokwelapha 101
• Ukuvakasha okukodwa, abahlinzeki abaningi
• Izaphulelo nezinhlelo zokukhokha
• Umbimbi lukuyo yonke indawo
• Izindleko eziningi zokwelashwa
• Imibhalo kanye nezithasiselo
• Ukulondolozwa kokuzala
• Ukwelashwa namathuluzi okuhlala uzolile
• Ukubhekana nokulahleka kwezinwele
• Impilo yansuku zonke
• Ukuthola izingubo ezintsha
• Ukudla okunempilo nokuzivocavoca umzimba
• Ukugcinwa kwezindlu
• Izikweletu ezijwayelekile zanyanga zonke nokuhamba
• Izinto zamahhala ezisiza ngempela
• Port umqamelo
• Tote for chemo
• Amaholide
• Ukuthatha

Ngemuva kokuthola ukuxilongwa kwesigaba 3 se-Hodgkin's lymphoma yakudala, ngezwa imizwa eminingi, kufaka phakathi ukwethuka. Kepha esinye sezici ezithinta kakhulu ukwethuka kohambo lwami lomdlavuza singakumangaza: ukuphatha izindleko. Ekuqokweni ngakunye kwezokwelapha, ngangikhonjiswa iphepha elichaza izindleko zalolu hambo, ukuthi umshwalense wami uzokhokhelani, kanye nenani engangibhekele lona.

Ngikhumbula ngokunganaki ngikhipha ikhadi lami lesikweletu kaninginingi ukuze ngikhokhe inani eliphansi elinconywayo. Lezo zinkokhelo, nokuziqhenya kwami, kwaqhubeka nokuncipha ngaze ngagcina ngikhipha amagama athi, "Angikwazi ukukhokha namuhla."

Ngalowo mzuzu, ngabona ukuthi ngangikhungathekiswe kangakanani ukuxilongwa kwami ​​nezindleko ezihambisana nakho. Ngaphezulu kokufunda ngokuthi uhlelo lwami lokwelashwa luzoba njani nemiphumela engemihle ebelungadala, ngifunde ngalokho okumele ngikukhokhele. Ngabona ngokushesha ukuthi umdlavuza uzothatha indawo yemoto entsha ebengifisa ukuyithenga kulo nyaka.

Futhi ngokushesha ngangena ezindlekweni ezingaphezulu ebengingazilungiselele, kusukela ekudleni okunempilo kuya kuma-wigi.

Kunzima ngokwanele ukubhekana nokuxilongwa komdlavuza ngaphandle kwezikweletu. Isikhathi esithile, ucwaningo, nezeluleko, ngiqoqe imininingwane eminingi mayelana nokuphatha izindleko zokwelashwa kwe-lymphoma kaHodgkin - futhi ngiyethemba ukuthi engikufundile kuyasiza nakuwe.

Ukukhokhiswa ngokwezokwelapha 101

Ake siqale ngezikweletu zezokwelapha. Nginenhlanhla yokuba nomshwalense wezempilo. Imali engibanjwayo iyalawuleka futhi nemali engaphezulu engaphuma ephaketheni - yize ibinzima kwisabelomali sami - ayiliphulanga ibhange.

Uma ungenayo umshuwalense wezempilo, ungahle uthande ukuhlola izinketho zakho ngokushesha okukhulu. Ungahle ufanelekele uhlelo lwezempilo olunesaphulelo noma iMedicaid.

Njalo ngenyanga, umshwalense wami ungithumela Ukulinganiselwa Kwezinzuzo (EOB). Lo mbhalo uchaza ukuthi iziphi izaphulelo noma izinkokhelo umshwalense wakho ozozinikeza zona ezinkampanini ezikukhokhisayo nokuthi yiziphi izindleko okufanele ulindele ukuzibophezela ngazo emasontweni alandelayo.

Ngezinye izikhathi ungakhokhiswa izinsuku, amasonto, noma izinyanga ngemuva kokuvakashela uchwepheshe wezokwelapha. Abanye babahlinzeki bami bakwazile ukukhokha online futhi abanye bathumela izikweletu ngeposi.

Nazi izinto ezimbalwa engizifundile endleleni:

Ukuvakasha okukodwa, abahlinzeki abaningi

Ngisho nokuvakashelwa okukodwa kwezokwelapha, ungahle ukhokhiswe ngabahlinzeki abaningi bezempilo abahlukahlukene. Lapho ngihlinzwa okokuqala, ngakhokhiswa isikhungo, udokotela ohlinzayo, udokotela obulala izinzwa, ilebhu elenza i-biopsy, kanye nabantu abafunda imiphumela. Kubalulekile ukwazi ukuthi ubona bani, nini, nokuthi yini. Lokhu kuzosiza ekuboneni amaphutha kuma-EOBs akho noma kuzikweletu.

Izaphulelo nezinhlelo zokukhokha

Cela izaphulelo! Bonke abahlinzeki bami bezokwelapha banginike izaphulelo lapho ngikhokha izikweletu zami ngokugcwele. Lokhu kwesinye isikhathi kwakusho izinto ezintantayo ekhadini lami lesikweletu amasonto ambalwa, kepha kwaba nemiphumela ekuhambeni kwesikhathi.

Kuyafaneleka futhi ukubuza ukuthi ungasebenzisa yini uhlelo lokukhokha lwezempilo. Ngikwazile ukudlulisa ibhalansi yami enkulu kunazo zonke kumuntu ovela eceleni ngemali mboleko yenzalo engamaphesenti ayi-zero ngezinkokhelo eziphansi ezingaphathwa.

Umbimbi lukuyo yonke indawo

Cabanga ngobuhlakani ngokuthi labo ongaba yizimbangi zakho kungaba ngubani uma kukhulunywa ngokulawula izindleko. Maduze ungathola usizo ezindaweni ongazilindele, ngokwesibonelo:

• Ngikwazi ukuxhumana nomxhumanisi wezinzuzo ngomqashi wami ongisizile ukukhomba izinsiza engizitholayo.
• Nganginesihlengikazi engabelwa sona ngomshuwalense wami owayephendula imibuzo mayelana nokutholakala kwami ​​nge-EOBs. Ubeze asebenze njengebhodi elizwakalayo lapho bengingazi ukuthi ngithathephi ngithole izeluleko.
• Omunye engangisebenza naye wayesebenze emkhakheni wezokwelapha amashumi eminyaka. Ungisizile ukuthi ngiqonde uhlelo futhi ngihambe ezingxoxweni ezinzima.

Kusuka kokuhlangenwe nakho kwami, ngibonile ukuthi ukuhambisana nezikweletu zezokwelapha kungazizwa njengomsebenzi wamatoho. Kungokwemvelo ukukhungatheka. Kujwayelekile ukuthi kumele ucele ukukhuluma nabaphathi.

Udinga ukwenza izinhlelo zakho zokukhokha zikusebenzele. Ungapheli amandla! Lokhu akufanele kube yisithiyo esikhulu empini yakho yokulwa nomdlavuza.

Izindleko eziningi zokwelashwa

Izindleko zezokwelapha ezihambisana nokuxilongwa komdlavuza zidlula izikweletu zokuqokwa kanye nabahlinzeki bezempilo. Izindleko zemigomo, ukwelashwa, nokuningi zingangezwa ngokushesha. Nalu ulwazi mayelana nokuphatha:

Imibhalo kanye nezithasiselo

Ngifundile ukuthi amanani emithi ayahluka kakhulu. KULUNGILE ukukhuluma nodokotela wakho ngezindleko. Yonke imiyalo yami inenketho ejwayelekile. Lokho kusho ukuthi ngikwazile ukuzitholela amanani ashibhile eWalmart.

Ezinye izindlela zokunciphisa izindleko zifaka:

• Ukuhlola okungenzi inzuzo kwasendaweni. Isibonelo, indawo engenzi nzuzo yasendaweni ebizwa ngeThemba Cancer Resources isebenzisana nehhovisi lami le-oncologist ukuhlinzeka ngosizo lokuthenga imiyalo ehlobene nokwelashwa.
• Ukusesha ku-inthanethi kungakusiza uthole izaphulelo noma izaphulelo. Uma uthatha isinqumo sokuthatha izengezo, yenza ukuqhathanisa kwentengo okusheshayo: Kungabiza kancane ukukukhetha ku-inthanethi.

Ukulondolozwa kokuzala

Bengingalindele ukuthi ngifunde ukuthi ukulahleka kokuzala kungaba nomphumela ohlangothini wokwelashwa.Ukuthatha isenzo ukugcina inzalo kungabiza, ikakhulukazi kwabesifazane. Ngakhetha ukugwema lezi zindleko, ngoba kungenzeka ukuthi kubambezele ukuqala kokwelashwa kwami.

Uma unentshisekelo yokulondolozwa kwenzalo, buza umshwalense wakho mayelana nokumbozwa kwakho. Ungahlola futhi nomxhumanisi wakho wezinzuzo ukubona ukuthi ungaluthola yini usizo kunoma yiziphi izinhlelo ezinikezwa umqashi wakho.

Ukwelashwa namathuluzi okuhlala uzolile

Ukuphila nomdlavuza kungakucindezela. Ngezinye izikhathi ngiye ngizwe sengathi ngisempini enkulu kunazo zonke empilweni yami. Yingakho kubaluleke kakhulu ukuzizwa wesekelwa futhi ufunde izindlela ezinempilo zokubhekana nazo.

Kepha noma kutholakala umshwalense, ukwelashwa kuvame ukubiza. Ngikhethe ukwenza lolu tshalo-mali ngazi ukuthi imali yami enkulu engaphuma ephaketheni yomshuwalense wami wezempilo izofinyelelwa maduzane. Lokhu kusho ukuthi bengingaya ekwelashweni mahhala cishe unyaka wonke.

Uma ungafuni ukuchitha imali kwezokwelapha, buza umqashi wakho, izindawo zokwelashwa zendawo, kanye nezindawo ezingenzi nzuzo zendawo ukuze ubone ukuthi ungaluthola yini usizo. Enye indlela ukuya emaqenjini okweseka noma ukubhangqwa nomuntu osindile onganikeza izeluleko.

Futhi kunezinye izindlela zokuqeda ukucindezeleka. Okwangimangaza kakhulu ukuthi abahlengikazi bami be-chemotherapy bangikhuthaza ukuba ngithole ukubhucungwa! Kunezinhlangano ezinikeza ukubhucungwa umzimba ngqo kweziguli ezinomdlavuza, njenge-Angie’s Spa.

Ukubhekana nokulahleka kwezinwele

Imithi eminingi yokwelapha umdlavuza ibangela ukulahleka kwezinwele - futhi ama-wigs angaba esinye sezici ezibiza kakhulu zokuphila nomdlavuza. Ama-wigi amahle wezinwele zabantu abiza amakhulu noma izinkulungwane zamaRandi. Ama-wigi wenziwe athengeka kakhulu kepha imvamisa adinga umsebenzi wokubenza babukeke njengezinwele zemvelo.

Uma uthatha iwigi, hlola i-YouTube noma ubuze isitayela sezinwele sakho ukuthola amathiphu okuthi ungayenza kanjani iwigi ingabonakali kangako. Ukusikwa, i-shampoo ethile eyomile, nokufihla kungenza umehluko omkhulu.

Uma kukhulunywa ngokukhokhela iwigi yakho, cela umshwalense wakho ukuthi ngabe imboziwe yini. Qiniseka ukusebenzisa igama elithi "cranial prosthesis" - lokho kuyisihluthulelo!

Uma umshwalense wakho engayifaki i-wig, zama ukuxhumana ngqo nabathengisi bama-wig. Abaningi bazonikeza isaphulelo noma amahhala ngokuthenga kwakho. Kukhona nezinye izinhlangano ezinhle ezihlinzeka ngama-wigs amahhala. Ngithole ama-wigs amahhala kusuka ku:

• Isisekelo seVerma
• Abangane Bangecala Lakho
• I-American Cancer Society iWig Bank, enezahluko zasendaweni

Enye inhlangano, ebizwa ngokuthi Izifiso Ezinhle, ihlinzeka ngezikhafu zamahhala noma ezisongelwa ekhanda.

Nasi isithombe sami ngigqoke i-cap wig engiyithole ku-Verma Foundation.

Impilo yansuku zonke

Ngaphandle kwezindleko zezokwelapha, izindleko zokuphila kwansuku zonke nomdlavuza zibalulekile. Futhi uma udinga ukuthatha isikhathi esithile emsebenzini okhokhelwayo ukugxila ekwelashweni, ukuhambisana nezikweletu kungaba nzima. Nakhu engikufundile:

Ukuthola izingubo ezintsha

Uma welashelwa umdlavuza, kungasiza ukuthi ube nezingubo ezintsha zokubhekana nezinguquko emzimbeni wakho. Ungahle uzwe ukuqunjelwa njengomphumela oseceleni wokwelashwa. Noma, ungahle ube nembobo efakwe ukuvumela ukufinyelela okulula emthanjeni.

Kunoma ikuphi, kunezindlela ezingabizi zokuthola izingubo ezintsha, kufaka phakathi ukushaya indawo yezimvume noma ukuthenga amasekeni. Futhi khumbula ukuthi abantu bazofuna ukukusiza. Cabanga ukwenza uhlu lwesifiso esitolo sakho sezingubo ozithandayo bese wabelana ngalo.

Ukudla okunempilo nokuzivocavoca umzimba

Ukugcina ukudla okunempilo nokuhlala usebenza ngangokunokwenzeka kuyimibono emihle - kepha kwesinye isikhathi kunzima kusabelomali.

Ukwenza kube lula, phokophela ukuvuleleka ekusizeni abantu empilweni yakho abangakunikeza. Ababili engangisebenza nabo bathatha isitimela sokudla kimi lonke unyango lwami. Basebenzise le webhusayithi ewusizo ukugcina wonke umuntu ehlelekile.

Ngincoma nokuthi ubeke okupholile kuvulandi wakho futhi ungeze amaphakethe e-ice lapho abantu beletha ukudla kuwe. Lokhu kusho ukuthi ukudla kwakho kungalethwa ngaphandle kokuphazamiseka nomndeni wakho.

Nginikezwe namakhadi amaningi ezipho ukulethwa. Lokhu kuza kahle uma usempintsheni. Enye indlela engokoqobo abangane abangangena ngayo ngokwakha obhasikidi bezipho zokudla okulula, okuphuzwayo, neziphuzo.

Uma kukhulunywa ngokuzivocavoca umzimba, cabanga ukuxhumana nehhovisi langakini le-American Cancer Society. Imayini inikezela ngezinhlelo zokudla okunomsoco kanye nezempilo mahhala. Ungabheka futhi esikhungweni somphakathi wangakini, kuma-gyms aseduze, nasezitudiyo zokuqina ukuze ubone ukuthi ungabamba iqhaza nini emakilasini amahhala noma uma enikeza izivivinyo zamakhasimende amasha.

Ukugcinwa kwezindlu

Phakathi kokuphila impilo yakho ejwayelekile kanye nomdlavuza wokulwa, kungokwemvelo ukuzizwa ukhathele - futhi ukuhlanza kungaba yinto yokugcina ozizwa uthanda ukuyenza. Izinsizakalo zokuhlanza ziyabiza, kepha kukhona ezinye izinketho.

Ngikhethe ukufaka isicelo sokusizwa nge-Cleaning for a Reason. Le nhlangano ikumatanisa nensizakalo yokuhlanza endaweni yangakini ezohlanza ikhaya lakho mahhala isikhathi esilinganiselwe.

Umngani wami - otholwe enomdlavuza ngesonto enganginalo ngalo - wasebenzisa enye indlela. Wenze uhlu lwemisebenzi ayedinga usizo kuyo futhi wavumela abangani ukuthi babhalisele imisebenzi ngayinye. Iqembu lonke labantu belinganqoba lolu hlu ngezingxenyana zesikhathi obekuzothatha yena ukubhekana nalo yedwa.

Izikweletu ezijwayelekile zanyanga zonke nokuhamba

Uma unenkinga ngezikweletu zakho ezijwayelekile zanyanga zonke noma ngezindleko zokuhamba eziya kuma-aphoyintimenti, kungasiza ukuhlola izinhlangano zasendaweni ezingenzi inzuzo. Isibonelo, endaweni yangakithi, iThemba Cancer Resources inganikeza abanye abantu usizo lwezezimali ngemibhalo, intela, izinsiza, ukukhokhelwa kwezimoto, uphethiloli nezindleko zokuhamba zokwelashwa ngaphandle kwedolobha. Banikela nangezokuthutha zabaqokelwe ngaphakathi kwebanga elingamamayela angama-60.

Izinsizakusebenza ezingenzi nzuzo ezitholakala kuwe zizoya endaweni yangakini. Kepha noma ngabe uhlala kuphi, abantu abasempilweni yakho bangafuna ukukusekela. Uma osebenza nabo, abangane, noma obathandayo befuna ukukuhlelela i-fundraiser - bayeke!

Lapho ngiqala ukuthintwa, ngangizizwa ngingakhululekile ngalo mbono. Kodwa-ke, ngalaba baqoqi bezimali, ngikwazile ukukhokha izinkulungwane zamaRandi ezindlekweni zami zokwelashwa.

Enye indlela ejwayelekile yokuthi abangane bakunikeze imali ngezinsizakalo ezinjengeGoFundMe, evumela ukuxhumana kwakho ukungena kumanethiwekhi abo omphakathi. IGoFundMe inesikhungo sosizo esinethiphu lamathiphu wokuthi ungayisebenzisa kanjani ngokugcwele i-fundraiser yakho.

Abantu empilweni yami nabo bathole izindlela ezihlukile zokuthola imali yokungisiza. Ithimba lami emsebenzini laqala umqondo "wokudlulisa isigqoko" ngokushiya inkomishi yekhofi etafuleni lami, ngoba ngangingeke ngibuyele ehhovisi amasonto amaningi. Abantu bangadlula futhi banikele ngemali njengoba bekwazi.

Omunye umqondo omnandi uvele kumngani othandekayo ongumxhumanisi weScentsy. Uhlukanise ikhomishini yakhe kusuka enyangeni yonke yokuthengisa nami! Phakathi nenyanga ayikhethile, ubengibungazela iqembu eliku-inthanethi nelingabantu uqobo. Abangani bami nomndeni wami bakuthandile ukuhlanganyela.

Izinto zamahhala ezisiza ngempela

Ngichithe amahora amaningi ngosizo lweGoogling olutholakala kubantu ababhekene nomdlavuza. Endleleni, ngifunde ngezinto zamahhala nezipho - futhi ezinye zazo zisiza kakhulu:

Port umqamelo

Uma unetheku isikhathi sokwelashwa kwakho, ungaqaphela ukuthi akukuhle ukugqoka ibhande lesihlalo. Inhlangano iThemba kanye ne-Hugs inikeza imiqamelo yamahhala enamathisela ibhande lakho lesihlalo! Le yinto encane eseyenze omkhulu umehluko empilweni yami.

Tote for chemo

Ubabekazi wami omnandi, owashaya umdlavuza webele, wayazi ukuthi ngangizodinga isikhwama esigcwele izinto zokuyisa ekhemotherapy eyenza ukwelashwa kube lula. Ngakho-ke, wangipha isipho somuntu siqu. Noma kunjalo, ungathola ithothi yamahhala ku-The Lydia Project.

Amaholide

Enye yezinto ezimangazayo engizitholile ukuthi iziguli ezinomdlavuza, futhi kwesinye isikhathi nabanakekeli, zingaya eholidini (ikakhulukazi) lamahhala. Kunezinhlangano ezingenzi-nzuzo eziningana eziqondayo ukuthi ikhefu empini yakho nomdlavuza lingabaluleka kanjani empilweni yakho. Nazi ezimbalwa:

• Izizukulwane Zokuqala
• Camp Iphupho
• Thatha Ikhefu Emdlavuzeni

Ukuthatha

Kimi, kwesinye isikhathi bekukhathaza ukucabanga ngokuphatha izindleko zomdlavuza. Uma uzizwa ngaleyo ndlela, sicela wazi ukuthi kunengqondo ngokuphelele. Usesimweni ongazange ucele ukuba ube kusona manje ulindelwe ngokuzumayo ukuthi ukhokhele izindleko.

Phefumula kanzima, bese ukhumbula ukuthi kunabantu abafuna ukusiza. Kulungile ukutshela abantu ukuthi yini oyidingayo. Zikhumbuze ukuthi uzodlula kulokhu, umzuzwana owodwa ngesikhathi.

U-Destiny LaNeé Freeman ungumklami ohlala eBentonville, AR. Ngemuva kokutholakala ukuthi une-lymphoma kaHodgkin, waqala ukwenza ucwaningo olunzulu ngokuthi lesi sifo singasilawula kanjani nezindleko eziza naso. I-Destiny ikholelwa ekwenzeni umhlaba ube indawo engcono futhi unethemba lokuthi abanye bayazuza kulwazi lwakhe. Njengamanje usekwelashweni, nohlelo lokusekelwa oluqinile lomndeni nabangane ngemuva kwakhe. Ngesikhathi sakhe sokuphumula, iDestiny ithokozela i-lyra ne-yoga yasemoyeni. Ungamlandela ku @sbahle_mpisane ku-Instagram.