Umlobi: Eugene Taylor
Usuku Lokudalwa: 12 Agasti 2021
Ukuvuselela Usuku: 1 Udisemba 2024
Anonim
Nganginovalo Lokuzama Amadivayisi Wokuhamba - futhi Ngavula Amandla Ami Wami Enqubeni - Impilo
Nganginovalo Lokuzama Amadivayisi Wokuhamba - futhi Ngavula Amandla Ami Wami Enqubeni - Impilo

-Delile

“Uzogcina usuhamba ngesihlalo esinamasondo?”

Ukube benginedola ngaso sonke isikhathi lapho ngizwa othile ethi njengoba ukuxilongwa kwami ​​yi-multiple sclerosis (MS) eminyakeni eyi-13 edlule, bengingaba nemali eyanele yokuthenga i-Alinker. Okuningi kulokho kamuva.

Ngaphandle kweminyaka eyi-13 yobufakazi obususelwa ekwazini abantu abaningi abaphila ne-MS abangasebenzisi izihlalo ezinamasondo, umphakathi jikelele uhlala ubonakala ucabanga ukuthi kulapho lolu hambo lonke lwe-MS luholela khona.

Futhi igama elithi "qeda" esihlalweni sabakhubazekile lingaphansi kokuhle, akunjalo? Njengendlela efanayo nawe “ogcina ngayo” ukwenza imisebenzi ethile ngeSonto ntambama, noma ukuthi “ugcina kanjani” ngethayi eliqhumile ngemuva kokushaya umgodi.

Yikes, indoda. Akumangalisi ukuthi abantu abane-MS, njengami, baphila izimpilo zethu ngalokhu kwesaba okusongelwe ngokudelelwa okugcwele ukwahlulela uma kukhulunywa ngombono wokudinga idivayisi yokuhamba.


Kepha ngithi shaya lokho.

Okwamanje angidingi idivayisi yokuhamba. Imilenze yami isebenza kahle futhi isenamandla impela, kepha ngithole ukuthi, uma ngisebenzisa eyodwa, inomthelela omkhulu ekutheni ngingahamba ibanga elingakanani noma ukuthi ngingenza isikhathi esingakanani ukwenza noma yini engiyenzayo.

Kungenze ngaqala ukucabanga ngamadivayisi wokuhamba, noma ngabe kuzwakala kuyicick - {textend} okuyigama lesayensi lokuthile okufundiswe ngumphakathi ukuthi ukwesabe futhi ube namahloni ngakho.

I- “ick” yilokho engikuzwayo lapho ngicabanga ukuthi ukuzihlonipha kwami ​​kungathinteka kanjani uma ngiqala ukusebenzisa umshini wokuhamba. Ngemuva kwalokho iyakhuliswa kunembeza enginawo wokucabanga umcabango onjalo wokukwazi.

Kuyihlazo ukuthi noma ngiyisishoshovu samalungelo okukhubazeka, angikwazi njalo ukuphunyula le nzondo egxilile kubantu abakhubazekile ngokomzimba.

Ngakho-ke, ngizinika imvume yokuhlola izinsiza zokuhamba ngaphandle kokwahlulela kwami ​​- i- {textend} empeleni engivumela ukuthi ngingakhathaleli omunye umuntu, noma.

Kungumbono walesi simanga esimangazayo lapho ungena khona ezintweni ongazidinga ngokuzayo, ukuze ubone ukuthi kuzwakala kanjani ngenkathi usenokukhetha.


Okungiletha ku-Alinker. Uma ubulokhu uqhubeka nezindaba ze-MS, uyazi manje ukuthi uSelma Blair une-MS futhi uboppin 'eduzane nedolobha ku-Alinker, okuyibhayisikili lokuhamba elizosetshenziswa esikhundleni sesihlalo sabakhubazekile noma i-walker kulabo abasenayo ukusetshenziswa ngokugcwele kwemilenze yabo.

Kuguquka ngokuphelele uma kukhulunywa ngezinsiza zokuhamba. Kukubeka ezingeni lemehlo futhi kunikeze ukwesekwa ukugcina isisindo sakho sisodwa ezinyaweni nasemilenzeni. Bengifuna ukuzama eyodwa, kepha lezi zingane azithengiswa ezitolo. Ngakho-ke, ngathinta u-Alinker ngabuza ukuthi ngingayihlola kanjani eyodwa.

Futhi ubungeke wazi, bekukhona intokazi ehlala kude nemizuzu eyi-10 kimi enikele ngokungiboleka eyayo amasonto amabili. Siyabonga, i-Universe, ngokwenza ncamashi engangifuna kwenzeke, kwenzeke.

Ngangena ku-Alinker, eyayinkulu kakhulu kimi, ngakho-ke ngafaka ezinye izigaxa ngashaya umgwaqo - {textend} ngabe sengithanda ibhayisikili elihambayo elingu- $ 2,000.

Mina nomyeni wami sithanda ukuthatha ukuhamba ebusuku, kepha kuya ngosuku engibe nalo, kwesinye isikhathi ukuhamba kwethu kufushane kakhulu kunalokho ebengingathanda ukuba yikho. Ngenkathi ngine-Alinker, imilenze yami ekhathele yayingaseyona imesis, futhi ngangikwazi ukuhamba naye isikhathi eside uma sifuna ukuhamba.


Ukuzama kwami ​​kwe-Alinker kwangenza ngacabanga: Kukuphi futhi empilweni yami lapho engingasebenzisa khona usizo lokuhamba oluzongenza ngikwazi ukwenza izinto kangcono, yize ngisakwazi ukusebenzisa imilenze yami njalo?

Njengomuntu okwamanje onqamula umugqa phakathi kwabanamandla nabakhubazekile, ngichitha isikhathi esiningi ngicabanga ukuthi ngingadinga nini ukwesekwa ngokomzimba - {textend} kanye nesiphepho esinamahloni esibandlululayo silandela ngemuva kakhulu. Kuyindaba elandelwayo engiyaziyo ukuthi ngidinga ukuyiphonsela inselelo, kepha akulula emphakathini osuvele ungaba nobutha kubantu abakhubazekile.

Ngakho-ke, nginqume ukusebenzela ukwamukela ngaphambi lokhu kuba yingxenye yaphakade yempilo yami. Futhi lokho kusho ukuthi ngizimisele ukungakhululeki njengoba ngivivinya izinsiza zokuhamba, ngenkathi ngiqonda nelungelo enginalo kulesi simo.

Indawo elandelayo engizame kuyo ibisesikhumulweni sezindiza. Ngazinika imvume yokusebenzisa isithuthi sabakhubazekile ngiya esangweni lami, elalisemaphethelweni omhlaba, eliyisango elikude kakhulu kwezokuphepha. Ngisanda kubona umngani enza lokhu, futhi yinto engakaze ifike engqondweni yami.

Kodwa-ke, ukuhamba ibanga elide kangako kuvame ukungishiya ngingenalutho lapho ngifika esangweni lami, bese-ke kufanele ngihambe ngiphinde ngikwenze futhi ezinsukwini ezimbalwa ukubuyela ekhaya. Ukuhamba kuyakhathaza njengoba kunjalo, ngakho-ke uma ukusebenzisa isihlalo sabakhubazekile kungasiza, kungani ungazami?

Nami ngenza njalo. Futhi kwasiza. Kepha ngicishe ngakhuluma ngayo ngisendleleni eya esikhumulweni sezindiza ngenkathi ngisalinde bona bangilande.

Esihlalweni esinamasondo, ngazizwa sengathi ngangizokwandisa “ukukhubazeka” kwami ​​emhlabeni, ngikubeke lapho ukuze wonke umuntu akubone futhi ahlulele.

Kufana nokuthi uma upaka endaweni enabakhubazekile bese kuthi okwesibili uphume emotweni yakho, uzizwe sengathi kufanele uqale ukuxhugela noma okuthile okukufakazela ngempela yenza ngidinga leyo ndawo.

Esikhundleni sokufisa ukuphuka umlenze kimi, ngakhumbula ukuthi ngangikuhlola lokhu. Lokhu bekungukukhetha kwami. Ngaso leso sikhathi ngezwa ukwahlulela engangikubonakalisile ekhanda lami kuqala ukuphakama.

Kulula ukucabanga ngokusebenzisa idivayisi yokuhamba njengokuvumela, noma ukuyeka. Lokho kungenxa yokuthi sifundiswa ukuthi noma yini ngaphandle kwezinyawo zakho ezimbili “incane kune,” ayiyinhle. Futhi ukuthi mzuzu lapho ufuna ukuxhaswa, nawe ukhombisa ubuthakathaka.

Ngakho-ke, ake sikubuyisele emuva. Masidlale ngamadivayisi wokuhamba, noma singazidingi nsuku zonke.

Ngisasalelwe yiminyaka embalwa ngaphambi kwami ​​ngaphambi kokuthi ngicabange njalo ngisebenzisa ithuluzi lokuhamba. Kepha ngemuva kokuhlola okumbalwa, ngibonile ukuthi awudingi ukulahlekelwa ukulawula okuphelele kwemilenze yakho ukuze uyithole ilusizo. Futhi lokho kwakunamandla kimi.

UJackie Zimmerman ungumxhumanisi wokumaketha wedijithali ogxile ezinhlanganweni ezingenzi nzuzo nasezinhlanganweni ezihlobene nokunakekelwa kwezempilo. Ngomsebenzi kuwebhusayithi yakhe, unethemba lokuxhumana nezinhlangano ezinkulu futhi avuselele iziguli. Uqale ukubhala ngokuphila ne-multiple sclerosis kanye nesifo samathumbu esibuhlungu ngemuva nje kokutholakala kwakhe njengendlela yokuxhumana nabanye. UJackie ubesebenzela ukuxhasa iminyaka eyi-12 futhi ube nelungelo lokumela imiphakathi ye-MS ne-IBD ezingqungqutheleni ezahlukahlukene, izinkulumo eziyisihluthulelo, nezingxoxo zephaneli.

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