Ukugijima Kusize Lo wesifazane Ukubhekana Nobunzima Ngemuva Kokutholakala Kwakhe Ngesifo Semisipha Esingajwayelekile

-Delile

• Buyekeza kwe-

Amandla okunyakaza yinto okungenzeka ukuthi uyithatha kalula, futhi akekho owazi lokho ngaphezu komgijimi uSara Hosey. Lo mfana oneminyaka engu-32 wase-Irving, TX, usanda kutholakala ukuthi une-myasthenia gravis (MG), isifo esingavamile kakhulu sezinzwa esibonakala ngokuba buthakathaka nokukhathala okusheshayo kwemisipha oyilawula ngokuqaphela emzimbeni wonke.

UHosey ubelokhu egijima selokhu asekolishi, ebambe iqhaza elibonakalayo kuma-5Ks nakuhhafu wemarathoni. Ukugijima kwaba yingxenye yempilo yakhe, futhi akazange acabange kabili ngokuzihlanganisa noma nini lapho ethanda. Usuku olucindezelayo emsebenzini? Akukho lutho ukugijima okusheshayo okwakungakwazi ukwelapha. Unenkinga yokulala? Ukuhamba isikhathi eside kwakuzomkhathaza. (Nazi izizathu eziyi-11 ezisekelwa yisayensi ezisebenza kahle kuwe.)

Kwathi ngolunye usuku ehlobo lanyakenye, ngokungalindelekile waqala ukuzenyeza ngenkathi edla isidlo sakusihlwa nomndeni wakhe. "Bengizizwa ngikhathele ngokwedlulele kula masonto ambalwa edlule, kodwa ngivele ngakufaka ku-stress," kusho uHosey. "Kwathi ngobunye ubusuku ngakwazi ukuhlafuna ukudla kwami ​​ngabe sengiqala ukubabaza amagama ami. Lokho kwenzeke kathathu ngaphezu kwamasonto amabili ngaphambi kokuthi nginqume ukuya esibhedlela."

Ngemva kokwenza uchungechunge lokuhlola, okuhlanganisa i-CT ne-MRI, odokotela abakwazanga ukuthola ukuthi yini engalungile. “Ngazizwa ngingenamandla futhi ngingalawuleki, ngakho ngaphendukela entweni eyodwa eyayihlale ingiqinisa: ukugijima,” usho kanje.

Uthathe isinqumo sokubhalisela ukuqala ukuqeqeshelwa i-United Airlines New York City Half Marathon, umjaho wakhe wesine kulelo banga. “Bengifuna nje ukuzizwa sengathi nginamandla phezu kokuthile, futhi ngangazi ukuthi ukugijima kuzongisiza ukwenza lokho,” kusho uHosey. (Ubuwazi ukuthi "umgijimi ophakeme" empeleni uyinto yangempela, efakazelwe ngokwesayensi?)

Ezinyangeni eziyisishiyagalolunye ezalandela, izimpawu zakhe ziphikelela, okwenza ukuqeqeshwa kwaba nzima kunangaphambili. "Umzimba wami awukaze uzizwe sengathi ngakha noma yikuphi ukukhuthazela," kusho uHosey. "Bengihlala ngisebenzisa iHal Higdon Novice 1 ukuqeqesha futhi bengikwenzela nalokhu. Kodwa imisipha yami ayikaze ibe ngcono njengakuqala. Bengingakwazi ukuyenza imayela ngesikhathi sokuziqeqesha ngaphambi kokuba ngiyeke. I ngabe konke ukuqeqeshwa kuqhubekile (ngaphandle kwabambalwa) futhi ukukhuthazela kwami ​​akukaze kuthuthuke. "

Phakathi nalesi sikhathi, odokotela bebengakakwazi ukukhomba ukuthi yini engalungile ngaye. "Ngazicwaninga kakhulu, ngathola uMG online," kusho uHosey. "Ngazibona izimpawu eziningi ngase nginquma ukucela udokotela wami ukuhlolwa kwegazi okuqondene nalesi sifo." (Okuhlobene: Ukusesha Okusha Kwe-Google Kwezempilo Kuzokusiza Ukuthola Ulwazi Olunembile Lwezokwelapha Ku-inthanethi)

Kwathi ngoFebhuwari walo nyaka, emasontweni ambalwa ngaphambi kokuthi abekelwe umjaho we-half marathon, odokotela bakuqinisekisa ukusola kwakhe. U-Hosey, empeleni, wayene-MG-isifo esingakabi nalo ikhambi. "Ngokweqiniso, bekukhululekile," usho njalo. "Ngangingasaphili ngokungabaza futhi ngesaba okubi kakhulu."

Odokotela batshela ukuthi ngenxa yempilo yakhe enhle engokomzimba, lesi sifo asizange simthinte ngokushesha ngendlela ebesingamphatha ngayo kumuntu ongaphilile kahle. Yize kunjalo, "Bengingaqiniseki ukuthi lokhu kutholakala kwesifo kusho ukuthini ngekusasa, ngakho-ke bengizimisele ngokuqhubeka nokuqeqeshwa kwami ​​futhi ngenze uhhafu noma ngabe yini," esho. (Usanda kubhalisela umjaho futhi awazi ukuthi ungaqala kuphi? Lolu hlelo lokuqeqesha i-half marathon kufanele lusize.)

UHosey usigcinile isethembiso asenza kuye futhi waqeda umncintiswano we-half marathon e-NYC kule mpelasonto edlule. "Bekuwukugijima okunzima kunakho konke engake ngakwenza," kusho uHosey. "Ngemva kokushaywa umoya, amaphaphu ami abuhlungu futhi ngafika entanjeni futhi ngakhala. Kwaba sengathi ngifeze lukhulu njengoba umzimba wami wawusebenza ngokumelene nami. Konke ukukhungatheka okusebenzelana nodokotela ababelokhu benikeza imithi engalungile kuvele kwaphuma. . Ngangiziqhenya futhi ngikhululekile ngokuthi ngiwufezile umgomo wami kodwa nayo yonke imizwa engangiyibambe yaphuma.

Ngokuxilongwa ngemuva kwakhe, imibuzo eminingi isalinde uHosey. Lesi sifo sizokuthinta kanjani ukunyakaza kwakhe isikhathi eside? Okwamanje, kunento eyodwa eqinisekile: ukugijima okuningi."Mhlawumbe ngizokwehla ngiye ku-5Ks, kodwa ngizoqhubeka nokunyakaza ngokusemandleni," usho kanje. "Kulula kakhulu ukukuthatha kalula lokho ongakwenza uze ulahlekelwe, khona-ke usunokwazisa okusha ngokuphelele ngakho."

U-Hosey uthemba ukuthi ngokwabelana ngendaba yakhe, angaqwashisa nge-MG futhi akhuthaze abantu ukuthi bahlale bekhuthele futhi baqhubeke nokuhamba ngoba "ngeke wazi ukuthi yini engenzeka."

Buyekeza kwe-