Ukuhamba ne-Hemophilia A: Okufanele Ukwazi Ngaphambi Kokuya

-Delile

• Qiniseka ukuthi unomshuwalense wokuvakasha
• Letha isici esanele
• Pakisha imithi yakho
• Ungakhohlwa incwadi yakho yokuvakasha
• Bheka ngaphambi kokugxuma
• Finyelela
• Ungesabi ukucela usizo
• Gqoka into esexwayisweni sezokwelapha
• Gcina umbhalo walokho infusions
• Futhi-ke, zijabulise!

Igama lami nginguRyanne, futhi kwatholakala ukuthi ngine-hemophilia A nginezinyanga eziyisikhombisa ubudala. Sengihambe kakhulu eCanada, nasezingeni elincane, i-United States. Nawa amanye amathiphu ami wokuhamba nge-hemophilia A.

Qiniseka ukuthi unomshuwalense wokuvakasha

Ngokuya ngokuthi uphokophelephi, kubalulekile ukuthi ube nomshwalense wokuvakasha ohlanganisa izimo ezazikhona ngaphambilini. Abanye abantu banomshuwalense esikoleni noma kumqashi wabo; kwesinye isikhathi amakhadi wesikweletu anikeza umshuwalense wokuhamba. Into esemqoka ukuqinisekisa ukuthi bahlanganisa izimo ezazikhona, njenge-hemophilia A. Uhambo oluya esibhedlela ezweni langaphandle ngaphandle komshwalense lungabiza.

Letha isici esanele

Qiniseka ukuthi uletha into eyanele ohambweni lwakho. Noma ngabe yiluphi uhlobo lwesici osithathayo, kubalulekile ukuthi ube nokudingayo ngenkathi ungekho (nokunye okunye uma kwenzeka kuphuthumayo). Lokhu kusho futhi ukupakisha izinaliti ezanele, amabhandeshi, kanye neziphuzo zotshwala. Sonke siyazi ukuthi imithwalo kwesinye isikhathi iyalahleka, ngakho-ke kuhle ukuphatha lezi zinto uhambe nazo lapho uqhubeka. Izindiza eziningi azikhokhisi imali eyengeziwe ngesikhwama sokuthwala.

Pakisha imithi yakho

Qiniseka ukuthi upakisha noma imuphi umuthi kadokotela owudingayo ebhodleleni labo lakuqala (kanye nasesikhwameni sakho sokuphatha!). Qiniseka ukuthi upakisha ngokwanele kulo lonke uhambo lwakho. Mina nomyeni wami sihlaya ukuthi udinga kuphela ipasipoti yakho nemithi yakho ukuhamba; ungashintsha enye into uma kudingeka!

Ungakhohlwa incwadi yakho yokuvakasha

Lapho usohambweni, kuhle ngaso sonke isikhathi ukuletha incwadi yokuvakasha ebhalwe ngudokotela wakho. Incwadi ingafaka imininingwane mayelana ne-factor concentrate oyiphethe, noma imuphi umuthi kadokotela owudingayo, kanye nohlelo lokwelashwa uma kwenzeka udinga ukuya esibhedlela.

Bheka ngaphambi kokugxuma

Umthetho omuhle wesithupha ukubheka ukuthi indawo ozoya kuyo inesikhungo sokwelashwa nge-hemophilia yini endaweni. Uma kunjalo, ungaxhumana nomtholampilo futhi ubanikeze ikhanda lokuthi uhlela uhambo lwedolobha labo (noma idolobha eliseduze). Ungathola uhlu lwezikhungo zokwelashwa kwe-hemophilia online.

Finyelela

Umphakathi we-hemophilia, ngokwami, uvame ukusondelana kakhulu futhi ube wusizo. Imvamisa, kunamaqembu abameli emadolobheni amakhulu ongafinyelela kuwo futhi uxhumane nawo ohambweni lwakho. Bangakusiza ukuthi uzulazule endaweni yakho entsha. Bangaphakamisa ngisho nokuheha okuthile kwasendaweni!

Ungesabi ukucela usizo

Noma ngabe uhamba wedwa noma nomuntu omthandayo, ungesabi ukucela usizo. Ukucela usizo ngemithwalo esindayo kungaba umehluko phakathi kokujabulela iholide lakho, noma ukulichitha embhedeni wopha. Izindiza eziningi zinikela ngezihlalo ezinamasondo nosizo lwesango. Ungacela futhi i-legroom eyengeziwe noma ucele izihlalo ezikhethekile uma ushayela inkampani yezindiza ngaphambi kwesikhathi.

Gqoka into esexwayisweni sezokwelapha

Noma ngubani onesifo esingelapheki kufanele afake isongo lezokwelapha noma umgexo ngaso sonke isikhathi (leli yithiphu eliwusizo noma ungahambi). Eminyakeni edlule, izinkampani eziningi ziphume nezinketho zesitayela ukufanisa ubuntu bakho nendlela ophila ngayo.

Gcina umbhalo walokho infusions

Qiniseka ukuthi ugcina irekhodi elihle lokungenwa kwakho ngenkathi usohambweni. Ngaleyo ndlela uzokwazi ukuthi ungakanani isici osithathile. Ungaxoxa nganoma yikuphi ukukhathazeka nodokotela wakho wegazi lapho ubuyela ekhaya.

Futhi-ke, zijabulise!

Uma uzilungiselele ngokwanele, ukuhamba kuzoba mnandi futhi kujabulise (noma unesifo segazi). Zama ukungavumeli ukucindezelwa okungaziwa kukuvimbe ekujabuleleni uhambo lwakho.

URyanne usebenza njengombhali ozimele eCalgary, e-Alberta, eCanada. Une-blog enikezelwe ukuqwashisa abesifazane abanenkinga yokopha ebizwa ngeHemophilia eyenzelwe Amantombazane. Uyivolontiya elikhuthele kakhulu emphakathini we-hemophilia.