I-Myelofibrosis: Ukubikezela nokulindela impilo

-Delile

• Ukuphatha ubuhlungu obuhambisana noMF
• Imiphumela emibi yokwelashwa kwe-MF
• Isibikezelo se-MF
• Amasu okubhekana nezinkinga

Yini i-myelofibrosis?

I-Myelofibrosis (MF) uhlobo lomdlavuza womnkantsha. Lesi simo sithinta indlela umzimba wakho okhiqiza ngayo amaseli egazi. I-MF futhi yisifo esiqhubekayo esithinta umuntu ngamunye ngokuhlukile. Abanye abantu bazoba nezimpawu ezinzima ezithuthuka ngokushesha. Abanye bangaphila iminyaka ngaphandle kokubonisa izimpawu.

Funda ukuze uthole okuningi nge-MF, kufaka phakathi umbono walesi sifo.

Ukuphatha ubuhlungu obuhambisana noMF

Esinye sezibonakaliso nezinkinga ezivame kakhulu ze-MF ubuhlungu. Izimbangela ziyahlukahluka, futhi zingafaka:

• i-gout, engaholela ebuhlungwini bamathambo namalunga
• i-anemia, nayo ebangela ukukhathala
• imiphumela emibi yokwelashwa

Uma usebunzimeni obukhulu, khuluma nodokotela wakho ngemithi noma ngezinye izindlela zokuyigcina ilawulwa. Ukuvivinya umzimba okulula, ukuzelula, nokuthola ukuphumula okwanele nakho kungasiza ekuphatheni ubuhlungu.

Imiphumela emibi yokwelashwa kwe-MF

Imiphumela emibi yokwelashwa incike ezicini eziningi ezahlukahlukene. Akuwona wonke umuntu ozoba nemiphumela emibi efanayo. Ukusabela kuncike kokuguqukayo okufana nobudala bakho, ukwelashwa, kanye nomthamo wemithi. Imiphumela yakho emibi ingahle ihambisane nezinye izimo zempilo oke waba nazo noma owake waba nazo esikhathini esedlule.

Eminye yemiphumela emibi kakhulu yokwelashwa ifaka phakathi:

• isicanucanu
• isiyezi
• ubuhlungu noma ukuluma ezandleni nasezinyaweni
• ukukhathala
• ukuphelelwa umoya
• imfiva
• ukulahlekelwa izinwele okwesikhashana

Imiphumela emibi ivame ukuphela ngemuva kokuba ukwelashwa kwakho kuqediwe. Uma ukhathazekile ngemiphumela yakho emibi noma unenkinga yokuyilawula, khuluma nodokotela wakho ngezinye izinketho.

Isibikezelo se-MF

Ukubikezela umbono we-MF kunzima futhi kuncike ezintweni eziningi.

Yize uhlelo lwesiteji lusetshenziselwa ukukala ubucayi bezinye izinhlobo eziningi zomdlavuza, alukho uhlelo lwesiteji se-MF.

Kodwa-ke, odokotela nabaphenyi bathole ezinye izinto ezingasiza ukubikezela umbono womuntu. Lezi zinto zisetshenziswa kulokho okubizwa ngokuthi yi-international prognosis score system (IPSS) ukusiza odokotela babikezele iminyaka emaphakathi yokuphila.

Ukuhlangabezana nenye yezinto ezingezansi kusho ukuthi isilinganiso sokusinda esiphakathi kweminyaka eyisishiyagalombili. Ukuhlangana kathathu noma ngaphezulu kungehlisa izinga lokusinda elilindelekile liye eminyakeni emibili. Lezi zinto zifaka:

• ukuba ngaphezu kweminyaka engama-65
• uhlangabezana nezimpawu ezithinta umzimba wakho wonke, njengomkhuhlane, ukukhathala, kanye nokwehlisa isisindo
• ukuba ne-anemia, noma ukubalwa kwesibalo segazi elibomvu okuphansi
• ukuba nesibalo samaseli amhlophe aphakeme ngokungajwayelekile
• ukuqhuma kwegazi (amangqamuzana amhlophe egazi angavuthiwe) amakhulu kunephesenti elilodwa

Udokotela wakho futhi angabheka ukungajwayelekile kofuzo kwamaseli egazi ukusiza ukunquma umbono wakho.

Abantu abangahlangabezani nanoma iyiphi yalezi zindlela ezingenhla, ngaphandle kweminyaka, babhekwa esigabeni esinobungozi obuphansi futhi basinda ngokulingene iminyaka engaphezu kwengu-10.

Amasu okubhekana nezinkinga

I-MF yisifo esingelapheki, esiguqula impilo. Ukubhekana nokuxilongwa nokwelashwa kungaba nzima, kepha udokotela wakho nethimba lezokunakekelwa kwempilo lingasiza. Kubalulekile ukuxhumana nabo ngokusobala. Lokhu kungakusiza uzizwe ukhululekile ngokunakekelwa okutholayo. Uma unemibuzo noma okukhathazayo, kubhale phansi njengoba ucabanga ngakho ukuze ukwazi ukuxoxa ngakho nodokotela nabahlengikazi bakho.

Ukutholakala unesifo esiqhubekayo njenge-MF kungadala ukucindezeleka okwengeziwe engqondweni nasemzimbeni wakho. Qiniseka ukuthi uyazinakekela. Ukudla ngokulungile nokuvivinya umzimba okuncane njengokuhamba, ukubhukuda, noma i-yoga kuzokusiza ukukunika amandla. Kungasiza futhi ukususa ingqondo yakho ekucindezelekeni okuhilelekile ekubeni ne-MF.

Khumbula ukuthi kulungile ukufuna ukusekelwa phakathi nohambo lwakho. Ukukhuluma nomndeni wakho nabangane kungakusiza uzizwe ungangedwa futhi usekelwa kakhulu. Kuzosiza nabangani bakho nomndeni wakho ukuthi bafunde ukuthi bangakusekela kanjani. Uma udinga usizo lwabo ngemisebenzi yansuku zonke efana nomsebenzi wasendlini, ukupheka, noma izinto zokuhamba - noma ngisho nokukulalela nje - kulungile ukubuza.

Kwesinye isikhathi ungahle ungafuni ukuhlanganyela yonke into nabangani bakho noma nomndeni wakho, futhi lokho kulungile futhi. Amaqembu amaningi endawo nawokuxhaswa kwi-inthanethi angakusiza ukukuxhumanisa nabanye abantu abaphila ne-MF noma izimo ezifanayo. Laba bantu bangakwazi ukuxhumana nalokho obhekene nakho futhi banikeze izeluleko nokukhuthaza.

Uma uqala ukuzizwa ukhungathekile ngokuxilongwa, cabanga ukukhuluma nochwepheshe oqeqeshiwe wezempilo yengqondo njengomeluleki noma isazi sokusebenza kwengqondo. Bangakusiza uqonde futhi ubhekane nokuxilongwa kwakho kwe-MF ezingeni elijulile.